CushingsHelp (Cushie Chats: Podcasts and Interviews with information and support for Cushing's patients) | Blog Talk Radio Fe
By CushingsHelp
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Podcast Description
Welcome to Cushing's Help and Support. Mary O'Connor (MaryO) is the founder of http://www.cushings-help.com . This site provides information, support, RSS feedsnews, and education for people with Cushing's (aka Cushies) or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. This website also deals with Thyroid Disorders, Addison's Disease, Adrenal Disorders, Cushing's Syndrome, Pituitary Disorders, Pituitary disease, Growth Hormone, Pheochromacytomas, Fibromyalgia, Chronic Fatigue Syndrome, Hormone and Gland Disorders, Conn's Disease, Hyperaldosteronism, High Blood Pressure, Hypertension, Diabetes, Sheehan's Syndrome, Men1, Acromegaly, Nelson's Syndrome, PCOS, Arthritis, Bipolar Disorder, Headaches, Autoimmune Diseases, PTU, Cortisol, ACTH, and Thyroid Antibodies. A Cushing's patient is often referred to as a Cushie.
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Andrea L, Pituitary Success Story - Oct 19,2011 | Andrea has had successful pituitary surgery after years of Cushings symptoms. Her entire pituitary gland was removed. Part of her bio reads: "I first noticed something abnormal about my health in the summer of 2009, at age 23. I suddenly developed severe acne when I had had clear skin since I was a teenager, and I noticed more hair on my face and body than I was used to. In retrospect I realize that I’d also had bouts of weight gain, a buffalo hump and excessive sweating during my adolescent years, but I didn’t think anything of it at the time... ...My new endocrinologist in New York ordered more tests (you all know the drill). Over the next six months or so the 24 hour UFCs kept coming back high, salivary cortisols were normal or high, and one dexamethasone suppression test was kind of ambiguous. The doctor said that my urine volume was really high and might be screwing up the results, so I retested after limiting my fluid intake. That UFC came back normal, so I was instructed to follow up in six months... ...August 23rd, 2011 was the day of my rebirth. I can attribute my euphoria in the week after the surgery to the strong pain meds I was on for the CSF drain, but by the time they were out of my system I was astounded to find that my mood and thinking were absolutely 100% normal. I can once again think, laugh, smile, sleep, taste, and enjoy the company of others. Within three weeks I had enough mental energy to resume working from home. | 10/19/11 | Free | View In iTunes |
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Mary O'Connor, Cushing's Help Organization - Aug 10, 2011 - Aug 11,2011 | Mary OConnor (MaryO), President, Cushings Help Organization, Inc. interview with Marianne Russo of The Coffee Klatch. We discussed pituitary, adrenal tumors, Cushings PCOS, acromegaly, prolactinomas and more. | 8/10/11 | Free | View In iTunes |
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Sue M, Adrenal Patient - Jul 27,2011 | Sue had Cushings for approximately fifteen years. She diagnosed herself with the help of a nurse friend and a book. Read Sues bio here. | 7/27/11 | Free | View In iTunes |
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Interview with Pat Gurnick - Jun 24,2011 | Pat had a Pituitary Tumor (Cushings Disease), Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS), Fibromyalgia, and Environmental Illness/Multiple Chemical Sensitivities. Pat updated her bio after successful surgery. She is found that there is life after Cushings!" Pat is a Psychotherapist, Certified Lifestyle Counselor, Chronic Fatigue Syndrome and Fibromyalgia Specialist, Certified Matrix Energetics Practitioner, Somatic Experiencing Trauma Educator, Integrated Energy Therapist and EFT Practitioner More information about Pat. | 6/23/11 | Free | View In iTunes |
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Robyn Y (2ndtimecushie), Recurrent Pituitary Patient - Jun 15,2011 | Robyn was diagnosed with Cushings Disease in 2004 and had 2/3 of her pituitary removed. This was after 8 years of going from doctor to doctor and thinking she was going to go crazy. She writes: "Anyway, after my surgery in February of 2004 I had probably a good three years and then I slowly started feeling bad again. I am now going through what I did 8yrs ago. My endocrinologist doesnt think that the Cushings is back because of my tests being borderline. He told me that he thinks I am obese and I need to have stomach surgery. I seriously cried for days and told him that I disagreed and I wasnt going to give up...I need support in following through with the tests that I need to. Like I said I have been putting them off because subconsiously I am so worried that they will tell me that I dont have the Cushings back and I will have to live like this the rest of my life. Tired of being so heavy and uncomfortably large, sweating to the point of dripping, aching all over and not having any desire or motivation to do anything. Im praying the tests come back showing that the tumor is back and they will go in and take the rest of the pituitary out." Read Robyns bio | 6/15/11 | Free | View In iTunes |
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Dr. Ted Friedman Returns for his Third Interview - Feb 14,2011 | Theodore C. Friedman, M.D., Ph.D. has opened a private practice, specializing in treating patients with adrenal, pituitary, thyroid and fatigue disorders. Dr. Friedman has privileges at Cedars-Sinai Medical Center and Martin Luther King Medical Center. His practice includes detecting and treating hormone imbalances, including hormone replacement therapy. Dr. Friedman is also an expert in diagnosing and treating pituitary disorders, including Cushings disease and syndrome. Dr. Friedman's career reflects his ongoing quest to better understand and treat endocrine problems. With both medical and research doctoral degrees, he has conducted studies and cared for patients at some of the country's most prestigious institutions, including the University of Michigan, the National Institutes of Health, Cedars-Sinai Medical Center, and UCLA's Charles Drew University of Medicine and Science. He has a private practice in Los Angeles specializing in hard-to-diagnose and treat cases of adrenal, pituitary, and thyroid disorders. He is the father of three children. Dr. Friedman lives in California. We will take written questions first. If there is time at the end, we will take callers. | 2/13/11 | Free | View In iTunes |
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Gracie, Scentsy Fundraiser Interview, 11/17/2010 - Nov 18,2010 | Gracie (fatnsassy) has been dealing with Cushing's symptoms for about 14 years. She began testing in California with Dr. Ted Friedman June, 2007 and she was diagnosed in May, 2008 with cyclical Cushing's disease. She saw Dr. Hae-Dong Jho just before this chat and arranged for her pituitary surgery in Philadelphia, Pa, in August, 2008. Gracie has decided to hold a Scentsy Fundraiser to help give back and help keep the boards going. She will answer questions about her generous fundraiser and how it works to benefit everyone for the holiday season. She has had a previous interview where she talked about her pituitary surgery. She may discuss her BLA at this one, as well. | 11/17/10 | Free | View In iTunes |
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Interview with Melissa F, Pituitary Patient - Nov 03,2010 | Melissa has had pituitary surgery and lots to say about her Cushing's experience. | 11/3/10 | Free | View In iTunes |
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Interview with Kristin (Koo), pituitary/BLA patient - Oct 20,2010 | Kristin (Koo) has had both pituitary and bilateral adrenal surgeries. She is a patient of Dr. Ted Friedman. Kristin had chronic sinus infections since pituitary surgery (even one major one during BLA and recovery!) | 10/20/10 | Free | View In iTunes |
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Interview with Carolyn (CarolynB) Pituitary Patient - Oct 06,2010 | Carolyn writes in her bio: I am 48 years old from Ottawa, Ontario, Canada. I was conclusively diagnosed with Cushing's, February 9, 2010. I had the transsphenoidal surgery, April 13, 2010. My Endocrinologist thinks I had the disease only a year or two but I think my Cushing's goes back many, many years. Since my mid twenties I started developing the symptoms: hips, thighs and arms thinning while gaining more and more belly fat. A red moon face and rosacea. Hair loss on my head while at the same time growing a mustache. I had anxiety, depression, even post dramatic stress. I developed insulin resistance with high blood pressure and triglycerides. MId twenties was the last time I saw a good night sleep... This website has been a "God Send" for me. I think I know more about Cushing's then many doctors now because of it. And I find much strength and encouragement when reading about others experiences." Read Carolyn's bio at http://cushie.info/index.php?option=com_content&view=article&id=710:carolyn-pituitary-bio&catid=32:bios&Itemid=68 | 10/6/10 | Free | View In iTunes |
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Interview with Aly H, 2-time Pituitary Patient - May 06,2010 | Aly had 2 pituitary surgeries and she is still producing cortisol. She might have to have radiation treatment but right now they are still testing her cortisol levels. | 5/6/10 | Free | View In iTunes |
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Melissa A, Sister of a 2-time Pituitary Patient - Apr 15,2010 | Melissa's sister has had 2 Cushing's pituitary surgeries. There is another family member who was born with Addison's Disease. Melissa is the Parrot Head Club Liaison for Jimmy Buffett's Margaritaville Key West. In this capacity, she has advanced Cushing's Awareness by adding links and info to the Margaritaville website because they like to highlight worthy and wonderful organizations. To contact Melissa, put Cushing's as the subject line when you email her at mel@margaritaville.com | 4/15/10 | Free | View In iTunes |
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Debbie, Undiagnosed Cushing's Patient - Mar 12,2010 | Debbie is not yet diagnosed with Cushing's but has several symptoms and is testing. She was diagnosed with Graves 15 years ago and has two VERY small nodules one of her adrenal glands. | 3/11/10 | Free | View In iTunes |
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Interview with Danielle (Smilez133), pituitary patient - Mar 05,2010 | Danielle writes in her bio: I started having noticeable Cushing's symptoms when I was 17 (2003) I started gaining weight and getting stretch marks. In the fall of 2004 when I moved away to college, I spent the first 3 weeks sick with Pneumonia. More weight gain, irregular periods, stretch marks, insomnia, kidney stones, shingles, fatigue, mood swings and muscle weakness followed for the next few years. In 2005, I came across an article about Cushing's and KNEW that was what I had. I had previously been diagnosed with PCOS and knew that didn't explain half of my symptoms. ... I had an IPSS to confirm the pituitary adenoma as the source, and had my first pituitary surgery on December 16th, 2009. After a week of losing weight and feeling better, I suddenly had high blood pressure, swelling in my legs, more irritability, and weight gain. I was taken off the replacement steroid medication I was on, and started testing again. It took about a month to get another high test, and I am scheduled to have half of my pituitary gland removed on February 11th. I am looking forward to a cure this time! It has been a long journey but hopefully this will be my turning point. | 3/4/10 | Free | View In iTunes |
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Sarah (saberlowe) Pituitary Interview - Feb 26,2010 | Sarah (saberlowe), February 25, 2010. Sarah had been sick for 9 years before her diagnosis in October 2009. She had pituitary surgery to remove 4mm x 5mm adenoma in November 2009. Her symptoms at onset were: rapid uncontrollable weight gain (50 lbs in a few months), huge purple stretchmarks on abdomen, inner thighs and breasts, GI problems, day time exhaustion, night time insomnia, fast heart rate, facial flushing, think skin and easy bruising, eustachian tube dysfunction, chronic episcleritis, dry cracked skin especially in fingertips, chronic thirst. Additional symptoms over the years: more weight gain, stretchmarks everywhere, hump, nausea, frequent urination, muscle weakness, muscle soreness, hair loss, headaches, very high blood pressure, dizziness. | 2/25/10 | Free | View In iTunes |
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Interview with Monic', pituitary patient - Feb 05,2010 | Monic's Bio: Hello My name is Monic’. I first started my Cushing’s journey when I left for college in 2006 I was 19. One month after I left home my symptoms started to appear. The first signs right from the beginning was weight gain and having no period. After a very long year of trying to figure out what was wrong with me I was sent to OHSU to see Dr.Cook. After many Dr. Appointments and being told I was crazy, Dr. Cook started testing me for Cushing’s. To his great surprise (no surprise to me) I passed all of the various testing to prove that I did have Cushing’s. 3 months later I had pituitary surgery. I was sent home but it was unclear if my surgery had worked. A month later I had my period and things were starting to look good. I returned to school that spring. By the end of spring quarter all of my symptoms had returned. I then went back to Dr.Cook only to be disappointed by his reply and his lack of confidence that I really did have Cushing’s. (Even after I had passed all of the tests.) After a couple of long months, I decided to go see Dr.Ludlam at Swedish Hospital in Seattle WA. The rest is history. After another long couple months of testing Dr.L was confident I still had Cushing’s. He gave me the choice to choose between a BLA and a second pituitary. On March 10th 09’ I had my BLA and life has been much better since. I can’t thank Dr.L and Kelley enough. Their team stuck with me against the odds. Dr.L also let me be the deciding factor on what I would like to do for treatment which was a huge blessing to me. I truly believe that there are many people suffering from Cushing’s disease that do not know they have it. I want to tell them that there is hope and to never give up. I would never be cured today if I had given up or listened to the first Dr. that told me “No you do NOT have Cushings.” | 2/4/10 | Free | View In iTunes |
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Interview with Brandon, undiagnosed Cushing's patient - Jan 22,2010 | Brandon started showing signs of Cushing's somewhere between age 9 and 11. To look at pictures of him in 2nd grade and 4th grade you would think they were two different kids. He started gaining weight like crazy, and no matter how much he dieted and exercised he couldn't lose it. He even tried a years worth of actual Navy entrance training and Atkins, and nearly ended up in the hospital from not eating carbs! He has always had mood swings and depression, at least for as long as he can remember, and always tired. Now he has back problems and leg cramps that keep him up at night, even when he takes sleep aids. Brandon is testing for Cushing's now. | 1/21/10 | Free | View In iTunes |
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Interview with Laura - Oct 30,2009 | This interview will take place at 9:00 PM eastern - please note later time! Laura has been struggling since 2007 with various odd things happening to her body. In March of 2009 she was diagnosed with Hashimoto's Disease and Hypothyroid. Her bio contains a long list of symptoms she has and she has been misdiagnosed with Obesity, Diabetes, Kidney stones, Depression, MS, Manic/Depressive, TIA, Anxiety - stress, Not exercising enough, Not eating properly, Abusive relationship (due to bruising). In responding to the email confirming this interview Laura wrote: "When I started reading the bio's of people like myself, I started to cry tears of relief that what I may have, is actually ONE real thing. I cannot tell you how happy I was to find your website and I think it is wonderful that so many people who truly understand how frustrating it is to think we are alone, are willing to put themselves out there as beacons of hope for the rest of us. I felt so strongly, that I wanted to add my bio and offer myself for interview. If I can help one person feel a little calmer while they go through this process, I am more than willing. I don't know if I have Cushing's but if I do, it is important to me to reach out to others because the attacks coming from the physical and mental side of this illness, deserve to be exposed and recognized. Even though I am feeling a bit humiliated, reclusive and embarassed because of what it is doing to me." Read Laura's entire bio at http://www.cushie.info/index.php?option=com_content&view=article&id=413:laura-undiagnosed-bio&catid=32:bios&Itemid=68 | 10/29/09 | Free | View In iTunes |
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Jon, pituitary patient - Sep 17,2009 | Jon's first pituitary surgery was with an inexperienced surgeon. He took Ketoconozole until his second surgery at UC San Francisco June 2nd, 2009. | 9/17/09 | Free | View In iTunes |
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Interview with Elizabeth (Beth) - Aug 06,2009 | Elizabeth has been sick for about 5 years. She was diagnosed with the start of cervical cancer so she had a LEEP done. Her cortisol level was still high so she went to Johns Hopkins and an endo there diagnosed her with Cushing's in May of 2009. Her pituitary tumor was removed in June 2009. | 8/6/09 | Free | View In iTunes |
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Interview with Joslyn - Jul 30,2009 | By the time of her interview, she will have had her adrenal surgery July 6. Read Joslyn's bio at http://www.cushings-help.com/labels/Joslyn.html | 7/30/09 | Free | View In iTunes |
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Interview with Elizabeth (Beth) - Jul 23,2009 | Elizabeth has been sick for about 5 years. She was diagnosed with the start of cervical cancer so she had a LEEP done. Her cortisol was still high so she went to Johns Hopkins and an endo there diagnosed her with Cushing's in May of 2009. Her pituitary tumor was removed in June 2009. | 7/23/09 | Free | View In iTunes |
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Interview with Lynn (Lynn) - Jun 18,2009 | Lynn had a left adrenalectomy in 2000. In 2004 Lynn had a Thyroidectomy due to tumor which was malignant on the biopsy, yet benign at surgery. In May 2009 she learned she had a 3mm anterior pituitary tumor. She is a patient of Dr Ted Friedman. | 6/18/09 | Free | View In iTunes |
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Interview with Gail (Dolly) - Mar 19,2009 | Gail was originally diagnosed with Cushing's in 1988. At that time she had a pituitary tumor removed. She was okay for about 10 years and the Cushing's occurred again. Her tumor was removed, as well as her pituitary glands. In 2003, it reoccurred and she had her adrenal glands removed. She is now experiencing all symptoms again and her Endo is puzzled since Gail has no glands, and has undergone radiation. The endo thinks maybe she now has Nelsons Syndrome. It has been a long battle because of the Cushing's, over 21 years, and it has effected her life dramatically. | 3/19/09 | Free | View In iTunes |
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Second Interview with Dr. Ted Friedman (DR. F) - Mar 13,2009 | Theodore C. Friedman, M.D., Ph.D., is an Associate Professor of Medicine at UCLA School of Medicine and Charles R. Drew University of Medicine & Science. He is the Chief of the Division of Endocrinology, Molecular Medicine and Metabolism. Dr. Friedman is board certified in Internal Medicine and Endocrinology, Diabetes, and Metabolism. He received his undergraduate degree from Stanford University in Chemistry and Biological Sciences and his M.D.-Ph.D. from Mount Sinai School of Medicine, with his Ph.D. from City University of New York in Pharmacology. He completed his internal medicine residency from University of Michigan and his fellowship in Endocrinology at the National Institutes of Health, National Institute of Child, Health and Human Development. He has a private practice in Los Angeles specializing in hard-to-diagnose and treat cases of adrenal, pituitary, and thyroid disorders. He is the father of three children. Dr. Friedman lives in California. | 3/12/09 | Free | View In iTunes |
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Cushing's Help Interview # 50: Ami (ADDflower) - Mar 06,2009 | Ami had pituitary surgery on January 27, 2009 at UCI University Hospital. Her doctor has been trying to figure out what is wrong with her for 12 years, but she really only joined her crusade 3 years ago, being unwilling to be sick. | 3/5/09 | Free | View In iTunes |
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Cushing's Help Interview # 49: Tammie (makeitgreen) - Feb 27,2009 | Tammie has been diagnosed with PCOS and has taken glucophage and clomid. She is still not feeling well and is seeking a diagnosis to help with her many symptoms. Read her whole bio at http://www.cushings-help.com/labels/Tammie.html | 2/26/09 | Free | View In iTunes |
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Interview with Gina (gmcook3) - Feb 13,2009 | Gina was diagnosed with cyclic Cushing's Disease in August 2008 and has a 3-4 mm abnormality on her pituitary gland and a possible adrenal problem. Read her entire bio at http://www.cushings-help.com/ginac.htm The Call-In number for questions or comments is (646) 200-0162. As always, this interview is in the eastern time zone. Convert to your timezone at http://www.globalmetric.com/time | 2/12/09 | Free | View In iTunes |
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Interview with Melissa (MELISSA74) - Feb 06,2009 | Melissa had pituitary surgery in October, 2008. She had recently had a baby so all her symptoms had been supposed to relate to her pregnancy. Melissa's brain MRI came back normal. She had a lot of other testing and the neurosurgeon finally saw an area that looked worthy of removal. Her surgery was successful and she has weaned off her cortisol. How can I convert to my Time Zone? Go to: http://www.globalmetric.com/time. The Call-In number for questions or comments is (646) 200-0162. | 2/5/09 | Free | View In iTunes |
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Interview with Dr. Ted Friedman (DR. F) - Jan 30,2009 | Theodore C. Friedman, M.D., Ph.D., is an Associate Professor of Medicine at UCLA School of Medicine and Charles R. Drew University of Medicine & Science. He is the Chief of the Division of Endocrinology, Molecular Medicine and Metabolism. Dr. Friedman is board certified in Internal Medicine and Endocrinology, Diabetes, and Metabolism. He received his undergraduate degree from Stanford University in Chemistry and Biological Sciences and his M.D.-Ph.D. from Mount Sinai School of Medicine, with his Ph.D. from City University of New York in Pharmacology. He completed his internal medicine residency from University of Michigan and his fellowship in Endocrinology at the National Institutes of Health, National Institute of Child, Health and Human Development. He has a private practice in Los Angeles specializing in hard-to-diagnose and treat cases of adrenal, pituitary, and thyroid disorders. He is the father of three children. Dr. Friedman lives in California. | 1/29/09 | Free | View In iTunes |
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Interview with Arubiana - Jan 23,2009 | Arubiana has attended Dr. William Ludlam's "Camp Cushie" to do definitive Cushing's testing. They found a microadenoma on the left side of her pituitary gland. She will be going to be having surgery with Dr Mayberg in March/April of 2009. In addition to seeing various doctors, Arubiana has seen an accupressurist for help with sleep and general health. | 1/22/09 | Free | View In iTunes |
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Interview with Aileene B - Jan 16,2009 | Aileene B will discuss the years she went undiagnosed, how she found out, her surgery/recovery and of course, the present. | 1/15/09 | Free | View In iTunes |
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Interview with Barbara (2maro) - Jan 09,2009 | Barbara (2maro) had surgery at MD Anderson with Dr. McCutcheon who removed her pituitary tumor transphenoidally. Miraculously, over the next 9 months, she lost 100 pounds. She is no longer diabetic and did not have high blood pressure until 2008. | 1/8/09 | Free | View In iTunes |
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Robin and MaryO discuss...everything - Nov 21,2008 | Our guest didn't call in so Robin and MaryO discussed a bit of everything from doctors to blogs, to the non-profit, to pending tests to any and everything. | 11/20/08 | Free | View In iTunes |
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Interview with Cyndie (aautomo884) - Nov 14,2008 | MaryO and Robin interview Cyndie (aautomo884). Cyndie started having symptoms 2004. She had 2 Parathyroid Adenomas removed June 2007. She is now ruling out MEN 1. | 11/13/08 | Free | View In iTunes |
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Interview with Kay (Casperslove) - Nov 07,2008 | MaryO and Robin interview Kay. Kay is mom to 6 year old twins and was "officially" diagnosed with Cushing's in February 2008. She had surgery to remove the pituitary tumor causing the Cushings in June of 2008. She is in the process of weaning off steroids orally. She documents her post-op experiences in her blog. She did some of her testing at Dr. Ludlam's "Camp Cushie". | 11/6/08 | Free | View In iTunes |
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Second Interview with Gracie - Oct 23,2008 | Join us as Mary O'Connor (MaryO) and Robin Smith (staticnrg) interview Gracie again. Gracie (fatnsassy) has been dealing with Cushing's symptoms for about 14 years. She began testing in California with Dr. Ted Friedman June, 2007 and she was diagnosed in May, 2008 with cyclical Cushing's disease. She saw Dr. Hae-Dong Jho and arranged for her pituitary surgery in Philadelphia, Pa, in August, 2008. This is her first post-op interview. | 10/23/08 | Free | View In iTunes |
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Interview with Stacey (stacey) - Oct 17,2008 | Join us as Mary O'Connor (MaryO) and Robin Smith (staticnrg) interview Stacey. Stacey will be one year post-op at the time of the interview. She will have been to her 1 year appointment and will give a full update of her recovery. | 10/16/08 | Free | View In iTunes |
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Interview with SusanM - Oct 09,2008 | Join us as Mary O'Connor (MaryO) and Robin Smith (staticnrg) interview long time Cushing's patient Susan (SusanM). Susan writes: Susan writes: As you may have read in my other post, I retired from a 28-year career at a major health insurance company (one of the big five) on March 31. 2008. I am happy with this achievement, however, much more proud of the actions I took to reach that achievement. Why so? For 27 of those 28 years, I had faced Cushings and we all know what difficulty that may bring. In 2003, I had the pit surgery and became quite ill in 2004. It wasn't until November, of 2005 that I had the BLA which brought about some relief. During all of this, I worked full time consistently until 2004 when I had to take some time off of work. I was GH deficient and had the episode of congestive heart failure. Once back at work, I applied for a work accommodation to work at home on Monday and Friday under the Americans with Disabilities Act. It was granted and I was provided with a full computer set up at home as well as the one at work. This made a great difference in my being able to work or not. Not driving the 26 miles each way to work as well as being at home continued my work. Another thing I did was to work with my PCP to be accepted into the Physical Rehab at the local hospital. It provided medically-monitored exercise (up to 5 days a week) and my muscles recovered well during this time. I had difficulty with shortness of breath due to the weak muscles around my lungs and this was a positive step to correct that situation. What else did I do to keep myself working during this timeframe? I worked incredibly hard on achieving a positive mental attitude! I meditated, performed self-hypnosis, and found a support system that worked for me. This foundation made the better days better and difficult days a bit less difficult. Can someone with Cushings continue working? In my opinion, YES. What it takes, however, is the drive to keep going and a bun | 10/9/08 | Free | View In iTunes |
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October 2, 2008: Dr. Rob will be interviewed by Robin (staticnrg) and Mary O'Connor (MaryO) - Oct 03,2008 | Dr Rob writes in his very popular blog: "I am a practicing primary care physician in the Southeastern US, caring for patients of all ages (Board Certified in both Internal Medicine and Pediatrics). This blog covers a wide variety of issues, including the following: What it is like to be a physician, dogs driving cars, what troubles are in our system, toddlers with flame-throwers, what would it take to fix that system, llamas, death and dying issues, mutants, and accordions. Maybe I need to write about mutant dying accordions with flame-throwers. Hmmm....I feel a post coming. Anyhow, I like variety. Life is always lived with both laughter and tears. If you are a regular reader of this blog, it is also filled with nausea and nightmares. Thanks for stopping by. -Dr. Rob" | 10/2/08 | Free | View In iTunes |
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Robin (staticnrg) and Mary O'Connor (MaryO) Discuss Spreading the Word about Cushing's, part 2 - Sep 25,2008 | Robin and MaryO discuss the role of blogs in helping to spread the word about Cushing's. They also discuss popular doctor blogs and other topics of interest to Cushing's Patients, friends and family. | 9/25/08 | Free | View In iTunes |
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Interview with Joselle - Sep 11,2008 | Joselle writes in her bio: "I am a 48 year old female recently diagnosed with Cushing's Disease caused by a pituitary adenoma. It's taken a few years to finally come to this diagnosis. I had a series of symptoms which were indicative of a variety of disorders. However, I don't present as the "typical" Cushing's patient as I don't have the "moon face" or "buffalo hump". Fortunately, I have a primary doctor who didn't give up and ultimately orderd the cortisol suppression test. He then referred me to an endocrinologist. I had an MRI this past week. I have an appointment with a neurosurgeon in a week. It's a bittersweet diagnosis; I am a little scared about the surgery, but THRILLED that I am not crazy.....and maybe I'll actually be able to stop SHAVING my face !!!!!!" | 9/11/08 | Free | View In iTunes |
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Robin (staticnrg) and Mary O'Connor (MaryO) Discuss Spreading the Word about Cushing's - Aug 21,2008 | This chat depended on Joselle's surgery and recovery. Unfortunately, she wasn't able to make it so her interview will be rescheduled. Robin and MaryO discussed the role of blogs in helping to spread the word about Cushing's. They also discussed popular doctor blogs and other topics of interest to Cushing;s Patients. | 8/21/08 | Free | View In iTunes |
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Interview with Mar (mrsb91986) - Aug 14,2008 | Mar (mrsb91986) signature reads: 6/04 DVT Deep Vein Thrombosis -diagnosed with Antiphospholipid syndrome & Lupus Anticoagulant 6/05 Rhuemy told me I "most likelly" have Sjogren's Syndrome 7/06 All normal Endo tests, except for the Saliva which was lost but a low IGF-1 at 77 4/9/07 Tests in Seattle 2 relatively high Midnight serums 7.2 & 8.8 IGF-1 86 + 7 x 6 mm tumor 4/07 to present Still testing 9/07 Phone consult with Dr. L semi-high saliva's 4.7, 4.9 and 36.1 !!! He said to continue testing selectively and will go to Camp Cushie 11/12/07 11/07 Camp Cushie 11/13 12:15 a.m. ACTH 10 Cortisol 11.1, 12:30 a.m. ACTH 10 Cortisol 8.5, 4:00 a.m. ACTH 45 Cortisol 22.2, 8:00 a.m. ACTH 8 Cortisol 9.3, 12:00 p.m. ACTH 11 Cortisol 13.3, 4:00 p.m. ACTH 8 Cortisol 5.8, 8:00 p.m. ACTH 11 Cortisol 6.9 11/14 12:15 a.m. ACTH 15 Cortisol 12.5, 12:30 a.m. ACTH 10 Cortisol 8.3, 4:00 a.m. ACTH 26 Cortisol 17.2, 8:00 a.m. ACTH 15 Cortisol 16.5 Random IGF-1 70 Final result of stim test: 71 L (101-267) Two midnight (11:59 p.m.) saliva's 7.4 & 4. Read her blog at http://cushings.invisionzone.com/index.php?automodule=blog&blogid=76& | 8/14/08 | Free | View In iTunes |
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Interview with Sheryl (sherylr) - Aug 07,2008 | Sheryl will talk about what it's been like living with Addison's after a BLA - for over 30 years. Read Sheryl's bio at http://www.cushings-help.com/sheryl.htm. The Call-In number is (646) 200-0162. | 8/7/08 | Free | View In iTunes |
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Interview with Gracie (Fatnsassy) - Jul 31,2008 | Gracie says: "I've been having symptoms of Cushing's at least 14 yrs. I began testing with Dr. F. June, 2007. I was diagnosed in May, 2008 with cyclical Cushing's disease. I have surgery coming up soon. I'm going to see Dr. J. next Monday, and I'll get my surgery date that day, so I will know by the night of the program, when I am going to surgery.) Let me know if you need more info." | 7/31/08 | Free | View In iTunes |
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Interview with Katie (kvb927) - Jul 24,2008 | Katie's short bio: Symptoms started in 2002 at age 22, or before. Jan. 2008 - 2 mm. area of differential enhancement on right pituitary and 11 mm. pineal cyst identified by MRI Jan. 2008 - DX - hypothalamic amenorrhea Mar. 2008 - DX - pituitary adenoma, hypogonadism - female Katie will be an officer in the upcoming Cushing's Help Organization | 7/24/08 | Free | View In iTunes |
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Interview with Kate (Fairley) - Jul 17,2008 | Kate (Fairley), July 17, 2008. Kate has had symptoms since 1991. She has had two pituitary surgeries and another recurrence. She is not yet cured and her current diagnoses are Idiopathic Intracranial Hypertension, panhypopituiarism and a CSF leak. She has appeared on National Geographic TV in the Science of Obesity. | 7/17/08 | Free | View In iTunes |
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Interview with Charlie (creativeogre) - Jul 10,2008 | Charlie is not yet diagnosed with Cushing's but has many symptoms. He writes, in part, "I understand that Cushing's Disease is a very difficult disease to diagnose. However, it seems as though we have had to guide doctors through this process over the past year. If I sound bitter and frustrated, it is because I am! I have not been able to work over the past year. Tasks that used to take me several hours to complete now take two days. I can no longer walk the dog. I do not sleep well at night an | 7/10/08 | Free | View In iTunes |
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Alicia Returns for a Second Interview, just after her Social Security Disability Medical Screening - Jun 26,2008 | Interview with Alicia, a Cushing's Message Board member who is still testing. Alicia writes "But my life has changed significantly since my last interview, and I could talk about losing my job and applying for Social Security at such a young age. And the issues about self-esteem tied to career, and risk of depression and isolation. Let me know...will be right after my disability medical screening, I should have lots to talk about!" | 6/26/08 | Free | View In iTunes |
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Interview with Donna Sellers, mother of a Cushing's patient - Jun 19,2008 | Donna Sellers, President, John's Foundation for Cushing's Awareness, mother of a Cushing's patient, June 19, 7:30 PM eastern | 6/19/08 | Free | View In iTunes |
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52 |
Interview with Dr. Dori Middleman, pituitary Cushing's survivor - Jun 12,2008 | Dr. Dori Middleman is a Psychophamacologist, Certified Gestalt Psychotherapist and Cushing's Patient. She has had both pituitary surgery and two gamma knife radiosurgeries. | 6/12/08 | Free | View In iTunes |
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Interview with Heather S, pituitary Cushing's survivor - Jun 05,2008 | Heather, pituitary surgery on January 18, 2006 after years of medical problems, June 5, 7:30PM | 6/5/08 | Free | View In iTunes |
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54 |
Steve Owens (sowens) returns to talk about support networks and agencies - May 29,2008 | Steve Owens (sowens) returns on May 29, 7:30. His topic will be building up support networks and using available agencies to get back to work (rehab, PT/OT, job coaches, etc). Steve was diagnosed with HyperBeta Adrenergic Syndrome in August, 2005. Doctors thought he might have a pheo, now they're checking for ACC cancer. | 5/29/08 | Free | View In iTunes |
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55 |
Interview with Leslie, pituitary Cushing's survivor - May 22,2008 | Leslie had pituitary tumors removed twice at the University Of Michigan. After her second surgery she gave birth to her second baby. She has had another recurrence and has had Gamma Knife Radiation April 3, 2008. | 5/22/08 | Free | View In iTunes |
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56 |
Interview with Jackie (samsmom) & Jordan - May 15,2008 | Jackie (samsmom) & Jordan: Cushing's in young people, the fight to diagnose, the amazing gift of a GOOD endocrinologist. Jackie has appeared on Discovery Health discussing her fight for a cure for her younger daughter, as well. Later, the gene responsible for Sam's illness was found. Her father carried the gene as did her two sisters. Jordan, Jackie's oldest daughter, has recently had her adrenals removed. | 5/15/08 | Free | View In iTunes |
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57 |
Interview with FerolV, pituitary survivor - May 08,2008 | Ferol started noticing irregular symptoms in her late 20's, but more developed since 2001, and rapidly more chronic as time went by. Finally at her March 2005 physical, she had enough symptoms listed for her GP to start getting the connection to Cushings. She was immediately referred to Dr. Adam Spitz, endocrinologist, with a battery of tests confirmed the initial diagnosis. Her pituitary surgery was performed 09-30-05. She has lost 30+ pounds after reaching a high of 190 prior to surgery ( | 5/8/08 | Free | View In iTunes |
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58 |
Interview with Monica, pituitary survivor - May 02,2008 | Listen as Monica (Monicaroni) talks about the challenges she's faced maintaining her music career while in testing and treatment. Monica was diagnosed with Cyclical Cushing's. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006. | 5/1/08 | Free | View In iTunes |
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59 |
Interview with Monica's Husband Kevin, about Caretakers - Apr 24,2008 | Monica's husband Kevin, April 24. Talking about Cushing's from the spouse/caretaker point of view He is also Monica's producer/ manager. He has been a tour manager and sound engineer in the music industry his whole life and has worked with many of the greats in the industry. For the two years during Monica's diagnosis and surgeries he worked from home as a computer programmer so that he could take care of Monica. Monica and Kevin were married two years ago, just before Monica's pituitar | 4/24/08 | Free | View In iTunes |
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60 |
Interview with Terry G, pituitary patient - Apr 17,2008 | Terry (Terry) is a long time pituitary Cushing's survivor. Terry had a pituitary surgery (in LA) in October of 2003 which did not cure her cushings disease. Then, Dec 13th, 2003 she had her BLA in a Wisconsin hospital. She also had an infection in her sphenoid sinus. It originated at the site of her pituitary surgery from October 2003. She had to be on a lot of antibiotics and narcotic pain relievers. In Sept 2005 the surgeon removed infection from one area, making another area clear..... | 4/17/08 | Free | View In iTunes |
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61 |
Interview with Steve Owens, adrenal patient - Apr 10,2008 | Steve was diagnosed with HyperBeta Adrenergic Syndrome in August, 2005. Doctors thought he might have a pheo, now they're checking for ACC cancer. Steve also has a newspaper article written about him. Steve's daughter may also have Cushing's. | 4/10/08 | Free | View In iTunes |
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62 |
SPECIAL Cushing's Awareness Day Voice Chat! - Apr 09,2008 | Listen as Jayne Kerns and Robin Smith (staticnrg) hosted a Cushing's Awareness Day Special Chat This chat had callers and some testimonials for the website and Mary O'Connor (MaryO). Ideas were discussed for setting up non-profit status for this website. Please call in to express your thoughts on this special day at (646) 200-0162. | 4/8/08 | Free | View In iTunes |
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63 |
Interview with Jenn, Steroid Induced (Iatrogenic) Cushing's patient - Apr 03,2008 | Jenn (StaceyJenn) was diagnosed with adrenal insufficiency, hypothyroidism, and a host of other ailments in 2001 (candidiasis, intestinal permeability, 22 latent food allergies). Once diagnosed, she was on specially formulated hydrocortisone for 7 years as she was allergic to the fillers in the meds. Her doctor stopped practicing and she was transferred to his associate. She switched StaceyJenn to medrol. After Cushing's symptoms, a new endo started weaning her off the medrol and she had many p | 4/3/08 | Free | View In iTunes |
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64 |
Interview with Monica and Crystal, pituitary buddies - Mar 27,2008 | Crystal and Monica went through every step of their Cushing's journey together--tested together, had surgeries the same days, and have become best friends because of it. Monica was diagnosed with Cyclical Cushing's. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006. Both surgeries were in Seattle. She is now free of Cushing's and am on the road to recovery! Monica is a profes | 3/27/08 | Free | View In iTunes |
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65 |
Interview with Karen Nolan, part 2 - Mar 20,2008 | Karen (Rooon55), part 2, March 20, 2008. Karen's disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing's, Thyroid disease, GH deficiency, and Auto immune Alopecia. She believes she is cured after two Pituitary surgeries. A doctor didn't advise Vermont's Karen Nolan (Rooon on the boards) that she might be one of the scant 3.5 per million people diagnosed annually with Cushing's disease - another Cushing's patient did. | 3/20/08 | Free | View In iTunes |
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66 |
Cushing's Diagnosis and Symptoms, part 2 - Mar 13,2008 | Listen as Robin Smith (staticnrg) and Mary O'Connor (MaryO) co-host Cushing's message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing's is and what the symptoms are. | 3/13/08 | Free | View In iTunes |
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67 |
Mary OConnor (MaryO) second interview with Robin Smith (staticnrg) - Mar 07,2008 | Robin had Cushing's for over 20 years, at least. Of course, no one figured it out or even put two and two together until her new PCP whom she found in 2004 said "endocrine". She didn't figure it out, either, but at least Robin had a piece of the puzzle and she found cushings-help.com. Robin immediately went into denial and left for several months until she got so sick she knew she had to have help. She had originally sought this PCP because she had been going to all sorts of doctors for all s | 3/6/08 | Free | View In iTunes |
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JenS discusses Bilateral Adrenalectomy (BLA) - Feb 29,2008 | Jen had Pituitary surgery by Dr. Shahinian 4/28/04, removed ACTH secreting corticotroph hyperplasia and prolactinoma. She was diagnosed by Dr. Ted Friedman as cyclical pituitary Cushings. Her second Surgery 7/21/04 for infection resulted in neuralgia. She had a BLA in March 2006 as Corticol Hyperplasia returned and she now has possible Nelson's syndrome. Jen also has Thyroid Issues (Hashimoto's, multiple nodules and entire thyroid removed 2003) and she is Growth Hormone Deficient (3/2006) | 2/28/08 | Free | View In iTunes |
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69 |
Interview with Karen Nolan - Feb 22,2008 | Karen (Rooon55), February 21, 2008. Karen's disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing's, Thyroid disease, GH deficiency, and Auto immune Alopecia. She believes she is cured after two Pituitary surgeries. A doctor didn't advise Vermont's Karen Nolan (Rooon on the boards) that she might be one of the scant 3.5 per million people diagnosed annually with Cushing's disease - another Cushing's patient did. | 2/21/08 | Free | View In iTunes |
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70 |
Mary OConnor (MaryO) interviews Robin Smith (staticnrg) - Feb 15,2008 | Mary O'Connor, Cushings-Help.com founder will interview Robin Smith (staticnrg). Robin had Cushing's for over 20 years, at least. Of course, no one figured it out or even put two and two together until her new PCP whom Robin found in 2004 said "endocrine". She didn't figure it out, either, but at least Robin had a piece of the puzzle and Robin found www.cushings-help.com . Robin immediately went into denial and left for several months until Robin got so sick Robin knew she had to... | 2/14/08 | Free | View In iTunes |
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71 |
Interview with Alicia, a patient who is still testing. - Feb 08,2008 | Interview with Alicia, a Cushing's Message Board member who is still testing. Alicia writes "Around the end of my Junior year, probably one of the worst things that could have happened during my 8 years of illness happened, I had severe psychiatric symptoms at school, including psychosis, and was put on a “students in crisis” plan and sent home for a little while. Being diagnosed as a “psych patient” would delay my diagnosis for years, most doctors just considered me "crazy." | 2/7/08 | Free | View In iTunes |
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Mary O'Connor (MaryO) interviews Jayne, Ectopic Cushing's Patient. - Jan 31,2008 | Mary O'Connor (MaryO) hosts an interview with Jayne, a Cushing's patient who had pituitary surgeries and a bilateral adrenalectomy before finding the true source of her ectopic Cushing's. | 1/31/08 | Free | View In iTunes |
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73 |
Interview with Judy, mom to 2 Cushing's Patients, and her daughter Jess - Jan 17,2008 | Interview with Judy, the mother of two Cushing's patients, and her daughter, Jess, a high school student with Cushing's. Robin (staticnrg) hosts. | 1/17/08 | Free | View In iTunes |
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74 |
Symptoms and Diagnosis: Cushing's Message Board Members - Jan 10,2008 | Robin Smith (staticnrg) hosted as Cushing's message board members called in to talk about their fight for diagnosis and treatment. Robin opened the show with a brief explanation of what Cushing's is and what the symptoms are. | 1/10/08 | Free | View In iTunes |
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75 |
Interview with Mary O'Connor aka MaryO, Cushings-Help.com founder - Jan 03,2008 | Interview with Mary O'Connor (MaryO), founder of Cushings-Help.com and 20-year pituitary Cushing's Survivor. Robin (staticnrg) hosts. | 1/3/08 | Free | View In iTunes |
| Total: 75 Episodes |
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