Elegy for a Disease
A Personal and Cultural History of Polio
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- $11.99
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- $11.99
Publisher Description
During the first half of the twentieth century, epidemics of polio caused fear and panic, killing some who contracted the disease, leaving others with varying degrees of paralysis. The defeat of polio became a symbol of modern technology's ability to reduce human suffering. But while the story of polio may have seemed to end on April 12, 1956, when the Salk vaccine was declared a success, millions of people worldwide are polio survivors.
In this dazzling memoir, Anne Finger interweaves her personal experience with polio with a social and cultural history of the disease. Anne contracted polio as a very young child, just a few months before the Salk vaccine became widely available. After six months of hospitalization, she returned to her family's home in upstate New York, using braces and crutches. In her memoir, she writes about the physical expansiveness of her childhood, about medical attempts to "fix" her body, about family violence, job discrimination, and a life rich with political activism, writing, and motherhood.
She also writes an autobiography of the disease, describing how it came to widespread public attention during a 1916 epidemic in New York in which immigrants, especially Italian immigrants, were scapegoated as being the vectors of the disease. She relates the key roles that Franklin Roosevelt played in constructing polio as a disease that could be overcome with hard work, as well as his ties to the nascent March of Dimes, the prototype of the modern charity. Along the way, we meet the formidable Sister Kenny, the Australian nurse who claimed to have found a revolutionary treatment for polio and who was one of the most admired women in America at mid-century; a group of polio survivors who formed the League of the Physically Handicapped to agitate for an end to disability discrimination in Depression-era relief projects; and the founders of the early disability-rights movement, many of them polio survivors who, having been raised to overcome obstacles and triumph over their disabilities, confronted a world filled with barriers and impediments that no amount of hard work could overcome.
Anne Finger writes with the candor and the skill of a novelist, and shows not only how polio shaped her life, but how it shaped American cultural experience as well.
PUBLISHERS WEEKLY
In skillful prose, Finger merges memoir with historical narrative about how polio was viewed and dealt with in the years before the Salk vaccine was invented 50 years ago. Evocative and often poetic, the memoir is also a litany of the miserable, useless, even harmful treatments imposed by helpless doctors on suffering children. She offers a nuanced history, for instance, of the painful and unorthodox heat treatments espoused by Elizabeth Kenny. Finger (Bone Truth), a creative writing teacher at Wayne State and the University of Texas at Austin, was a toddler when she contracted polio in 1954 and describes the traumatic operations, beginning when she was six, that led in turn to complications when she was in her 40s. Taught to believe that she could overcome her disability, Finger overexercised and, while living in England, attended antiwar demonstrations that were physically dangerous. Hospitalized with depression at 20, Finger believes her emotional state can be attributed to polio's effects on the brain in addition to having an abusive father who once choked her during a rage. After years of dissociating herself from others who had had polio, Finger writes, she slowly began her involvement in the disability rights movement and has dealt with a diagnosis of postpolio syndrome.
