Talking With Tech AAC Podcast Rachel Madel and Chris Bugaj

This week, Chris and Rachel interview Bob Sagoo! Bob is the father of Harchie, an 18-year-old young man with cerebral palsy who uses an AAC device with eye tracking to communicate (along with other modalities). Bob shares about Harchie’s AAC journey, Bob’s work to get Harchie mainstreamed in school, Harchie going to college, and more!
 
Before the interview, Chris and Rachel talk about delivering fun experiences while teaching about language with AAC! They share about why we need to bring playfulness and a playful energy, and some ideas for ways we can bring the fun, like humor, music, dressing up, painting, and modifying games!
 
Key ideas This Week:
 
🔑 Parents need to feel empowered - in any situation, parents are the expert when it comes to their child. It’s Ok to respect specialists for their experience and knowledge, but when it comes to your child, you are the expert. You are their advocate and speak on their behalf until they are able.
 
🔑 It’s for OK not to be OK. There is often a lot behind the scenes going on within families that we don’t see, especially for families of children with complex bodies. We need to give parents grace when working with them - if they don’t do something we recommend, there is probably a reason other than “they don’t care.”
 
🔑 Bob says the feeling he gets when he wakes up at three in the morning, of “I don’t know what my kid is going to do after I’m gone,” doesn’t really go away, but it can be helped a lot by taking the time to reach out and find out as much as you can. That will help you become as informed as possible as you learn about what your child needs.
 
🔑 If parents are feeling overwhelmed by information about their child’s needs and don’t know where to start, one good place is to connect with other parents of children with special needs,  They can help you get started moving in the right direction, and anytime you’re going through something difficult, knowing you’re not alone can be very powerful!
 
Visit talkingwithtech.org to listen to previous episodes, find new resources, and more!
 
Help us develop new content and keep the podcast going strong! Support our podcast at patreon.com/talkingwithtech!

This week, we hear Chris’s interview with Beth Moulam and Joanna Holmes! Beth is a master student, former Paraolympian, a Trustee of Communication Matters (a branch of ISSAC), and patron of a charity called One Voice. She is a multi modal communicator who often uses AAC devices to communicate. Joanna (@mummyvsaac on Instagram) is the mother of Lucy, a 9-year-old multimodal communicator with a complex medical history that includes a genetic component. They share about Beth’s AAC journey, the importance of a language rich environment on AAC development, the multimodal nature of communication, and more!
 
🔑 Beth doesn’t feel she will ever reach her final communication destination, because she is always learning. Learning to use AAC is a labor of love, it takes hours of practice and lots of resilience for the user, families, and their support networks.
 
🔑 Beth and Joanna both emphasize the many modes of communication a complex communicator uses to communicate.  A person’s communication “system” is more than the AAC app a person uses, it is everything that person does to communicate with others.
 
🔑 There is a popular misconception that getting an AAC device will lead to lots communication. You also need the language to use it, which for some is a long jump. Learning to use AAC for most people isn’t like flicking a switch, its like building a house - it takes a team of people, doing their best to do things in the right order, learning nail-by-nail, to use AAC together.
 
🔑 Beth had a communication rich home environment as a child, including being read to daily and having phonics on her bedroom wall that she discussed with her mother. She believes this was really important to her literacy and ability to work with AAC at a young age.
 
Visit talkingwithtech.org to listen to previous episodes, find new resources, and more!
 
Help us develop new content and keep the podcast going strong! Support our podcast at patreon.com/talkingwithtech!

This week, Chris interviews Daniel O’Conner and Bradley Haven of All Access Life! All Access Life is a nonprofit that showcases the latest trends and movements in adaptive products and assistive technologies on their website allaccesslife.org. Daniel & Bradley share about how they met when Daniel was Bradley's Aide in high school (Bradley has nonverbal Dyskinetic Cerebral Palsy), how they came to decide to create a nonprofit together, and how they developed their mission to share information about adaptive products. They also discuss Bradley’s AAC journey and how the technology has progressed from the switches Bradley used as a teenager to the current eye tracking he uses on his TD Pilot device.
 
Before the interview, Rachel shares about a family who had a very strong emotional reaction to having their child’s voice changed from a child’s voice to a teenager’s voice, and why we need to include the family and give lots of advance warning if we want to make a change to voice output for maturity purposes.
 
Key Ideas this Week:
 
🔑 We should try and spread the word about current accessibility gaming options, like Copilot with the Xbox Adaptive Controller, that allow people like Bradley to play video games.  Accessable gaming opens up social opportunities and allow users to engage with friends and family in new ways!
 
🔑 A lot of companies don’t think about the fact that people with disabilities use their product. Big companies like Microsoft embracing inclusive design with their Xbox Adaptive Controller helps move the field forward, but there is more work to be done!
 
🔑 Bradley says “nothing about us, without us,” meaning he wants companies who create products to get feedback from actual people with disabilities at every step of product creation.
 
🔑 Playing video games in schools shouldn’t be a carrot at the end of a difficult task, but rather something woven in (e.g. tallying up classroom scores on Rocket League to practice addition) to make learning more engaging.
 
Links from This Weeks Episode
 
Miles Harvey - Esports Research and Its Integration in Education (Advances in Game Based Learning)
 
How to Use Copilot on Xbox

This week, we share Rachel’s interview with Breea Rosas! Breea is a school psychologist who works with educators on how they can implement neurodiversity affirming practices and neurodiversity affirming psychoeducation! Breea shares about the neurodiversity affirming approach and three key areas she works with educators and practitioners to address: 1) What assessments are we choosing; 2) How are we writing assessments; and 3) What are we communicating to the families in meetings?
 
Before the interview, Chris shares his discomfort with using descriptions that label people as “typical” when the concept of “average” does not really capture the nuances that make up a person and could even be reductive.
 
Key Ideas this Week:
 
🔑 Breea always writes reports as if the child will read it in 10 years, and she asks herself “How would it make them feel?”
 
🔑 We should be thoughtful about the assessments we are choosing. If you know, “Kids with ADHD, they are always bombing assessment X,” then consider giving a different assessment! You don’t always need to get the same tests to every student.
 
🔑 Parents have a lot of voice in IEP meetings - if as a parent, you hear a goal that doesn’t align with your philosophy, you can say, “This doesn’t align with our goals as a family. We don’t agree with this, we want something more creative.” As a parent. if something feels wrong, you should say something!
 
Links from This Week’s Episode
 
“The Myth of Average” Tedx Talk: https://youtu.be/4eBmyttcfU4?si=XcuHQrYCTEznV0iR
 
Neurodiversity Affirming School-Based & Consulting Practitioners Facebook Group
 
Autism Level Up: https://www.autismlevelup.com

This week, Rachel interviews Kelley Coleman, speaker, author, and advocate! Kelley talks about her family’s AAC journey and her role as the mother of Aaron, a complex communicator in the 4th grade who uses AAC to communicate. She shares about her new book, Everything No One Tells You About Parenting a Disabled Child, as well as some of the high- and lowlights of her family’s AAC journey, including when Aaron’s school SLP suggested he go from high-tech AAC to a picture flip book!
 
Before the interview, Rachel shares about turning a client's questions about her microphone into a naturally occurring communication opportunity about podcasting - that also supported his independence!
 
Key ideas this week:
 
🔑 The goal shouldn’t bet just be communication for an AAC user, it should be autonomous communication. Not every student can communicate independently, but every AAC user can learn to communicate autonomously (e.g. share what they want to say, when they want to say it). Rachel was against the flip book because, among other reasons, Aaron wasn't physically able to use it independently. 
 
🔑 Kelley was told by her school SLP, “The only way Aaron will learn to communicate is if you use this flip book with 100% fidelity.” Kelley had so many responsibilities at the time, she couldn’t be with Aaron at every moment, and it made her feel like she was going to fail before she started. You have to meet parents where they are at and make modeling sustainable - something small every day is better than being so overwhelmed that you don’t even start! 
 
🔑 People who support AAC users should always try and keep an open mind in areas where they are not familiar.  Often, when a person can’t do something, it isn’t  because they are incapable - it’s because we haven’t supported that skill well enough yet!
 
🔑 Kelley says, as a parent, you should always be cognizant that the members of your IEP team may be providing services to your child for months (or even years) after that IEP meeting. It doesn't always make sense to yell at someone who is going to be providing services to your child for months (or even years) afterwards.
 
Visit talkingwithtech.org to listen to previous episodes, find new resources, and more!
 
Help us develop new content and keep the podcast going strong! Support our podcast at patreon.com/talkingwithtech!

This week, Rachel interviews Heidi Rabe, an SLP who specializes in supporting AAC users with complex bodies who use switches and scanning to communicate! Heidi shares a wealth of information about scanning and switches, including how to evaluate if a student needs a switch, working with PT/OT to find the right switch spot, using partner-assisted scanning, and more!
 
Before the interview, Chris and Rachel discuss a question from a listener about a student who is “adding random words” (and how the least dangerous assumption is that it’s purposeful and meaningful, and we should get to the bottom of it)!
 
Key ideas this week:
 
🔑 When Heidi is considering scanning and switches for a client, she thinks about whether they can reliably select from the size array that they need in order to communicate. Also, are their motor skills reliable? Are they having difficulty selecting symbols, even with a keyguard or touch guide?
 
🔑 Partner-Assisted Scanning is a scanning strategy where a partner verbally offers choices at a consistent rate, and the AAC user indicates what word they want. PAS allows for scanning without the time constraints that exist when presenting choices on a speech-generating device. There is usually a book that tells the partner what choices to say, and in what order. That way, the partners are consistent every time, which allows the AAC user to anticipate what words are coming. See a video on it here.
🔑 When you are using auditory scanning on a speech-generating device, you want the preview voice to be very different from the speaker voice.  Otherwise, communication partners get confused and respond to the wrong voice. Also, ideally you also want the preview voice to be quieter, and to be transmitted through a personal speaker.
 
🔑 When doing Partner-Assisted Scanning, Heidi gives the option of “None of those” as the last option. Similarly, after they make a selection, you can offer “I have more to say” “That’s all I have to say” and “Oops, that was a mistake” as choices.
 
Visit talkingwithtech.org to listen to previous episodes, find new resources, and more!
 
Help us develop new content and keep the podcast going strong! Support our podcast at patreon.com/talkingwithtech!