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The Boy in the Moon

A Father's Search for His Disabled Son

Ian Brown

This book is available for download with iBooks on your Mac or iOS device, and with iTunes on your computer. Books can be read with iBooks on your Mac or iOS device.

Description

Walker Brown was born with a genetic mutation so rare that doctors call it an orphan syndrome: perhaps 300 people around the world also live with it. Walker turns twelve in 2008, but he weighs only 54 pounds, is still in diapers, can’t speak and needs to wear special cuffs on his arms so that he can’t continually hit himself. “Sometimes watching him,” Brown writes, “is like looking at the man in the moon – but you know there is actually no man there. But if Walker is so insubstantial, why does he feel so important? What is he trying to show me?”

In a book that owes its beginnings to Brown’s original Globe and Mail series, he sets out to answer that question, a journey that takes him into deeply touching and troubling territory. “All I really want to know is what goes on inside his off-shaped head,” he writes, “But every time I ask, he somehow persuades me to look into my own.”

From the Hardcover edition.

Publishers Weekly Review

14 March 2011 – Canadian writer Brown presents a moving and deeply felt account of his life with his son Walker, who is one of fewer than 300 people in the world who were born with CFC, cardiofaciocutaneous syndrome, an extremely rare genetic mutation that didn't even have a name until 1986. Brown is uncompromising in his description of his son's condition—which includes mental and physical disabilities such as seizures, severe facial irregularities, an inability to speak, and a compulsion to hit himself—as well as the impact that raising him has had on Brown, his wife, and their daughter: "the years of desperate worry and illness and chronic sleep deprivation... threatening our marriage and our finances and our sanity." But Brown spends an even greater amount of time sensitively describing the many joyous moments that reveal to him how "Walker is an experiment in human life lived in the rare atmosphere of the continuous present." And the second half of the book describes Brown's fascinating worldwide investigations into the various living situations offered to people with CFC as well as his visits with other families whose children have CFC.
The Boy in the Moon
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  • 13,99 €
  • Available on iPhone, iPad, iPod touch, and Mac.
  • Category: Fiction & Literature
  • Published: 22 September 2009
  • Publisher: Random House of Canada
  • Print Length: 304 Pages
  • Language: English
  • Requirements: To view this book, you must have an iOS device with iBooks 1.3.1 or later and iOS 4.3.3 or later, or a Mac with iBooks 1.0 or later and OS X 10.9 or later.

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