10 episodes
The National Fragile X Foundation Podcast The National Fragile X Foundation
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- Health & Fitness
Podcasts from Fragile X professionals and experienced family members. If you have any questions or suggestions, email NATLFX[at]fragilex[dot]org
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Preparing Yourself for the 13th International Fragile X Conference Part 3 of 3
Experienced parents and conference-goers, give you the lowdown on how to prepare for the 13th International Fragile X Conference in Miami.
Featuring
Jayne Dixon Weber
Arlene Cohen
Michele Kaplan
Part 3
The Emotional Aspect of the Conference
Taking Care of Yourself
Meeting New Friends and Reconnecting
Questions and Concerns -
Preparing Yourself for the 13th International Fragile X Conference Part 2 of 3
Experienced parents and conference-goers, give you the lowdown on how to prepare for the 13th International Fragile X Conference in Miami.
Featuring
Jayne Dixon Weber
Arlene Cohen
Michele Kaplan
Part 2
When are Most People Arriving?
What Kinds of People will be There?
The Wednesday 3:45 Session
Other Things to Know
Spotlight on Extra Conference Activities -
Preparing Yourself for the International Fragile X Conference. Part 1 of 3
Experienced parents and conference-goers, give you the lowdown on how to prepare for the 13th International Fragile X Conference in Miami.
Featuring
Jayne Dixon Weber
Arlene Cohen
Michele Kaplan
Part 1 features
Getting Ready at Home
Arriving at the Miami Airport
Nearby and Must See Attractions
Conference Registration
Childcare -
Let's Get Going: Toileting Ideas
With Karen Riley, PhD, Cindi Rogers, parent, and Jayne Dixon Weber, Coordinator of Support Services, NFXF & parent. A 65 minute recorded interview about toileting ideas.
This is from the archives and was recorded in April 2009. -
Transitioning Forward (Part 1 of 2)
In this episode, we interview two people whose children are moving forward in their lives. Melissa Street's son Jesse is transitioning into a typical classroom, and Carolyn Jackson's two daughters are planning life after high school.
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Self-Regulation Through the Lifespan
What is self-regulation and how do we modify it for Fragile X?
Join the NFXF's Robert Miller and Jayne Dixon Weber as they interview LINKS Leader/Parent Laureen Majeske and Developmental FX's Tracy Stackhouse and Sarah "Mouse" Scharfenaker for a discussion on how self-regulation makes things work for Fragile X.
Note: We apologize for some technical difficulties throughout much of this Podcast. We promise that we are doing our best to find a good way to record our calls so that it is much clearer and has less echo. Please bear with us as we get used to these new technologies!