The One in a Million Baby
By Tessa Prebble
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This show tells the stories of the children and their parents who find themselves in that one in a thousand, or one in ten thousand, or even one in a million position of having a child with special needs and how they come to cope. Finding those odds apply to you and your child can be one of the most isolating and terrifying experiences of your life. But then sometimes it can also feel like winning the lottery.
||CleanEpisode 18: Savannah and David - And Yet We Rise||Artist, writer and art teacher, David Borden lost his daughter to complications of cerebral palsy in 2015, just shy of her 16th birthday. Since then he has been working on a graphic novel, And So We Rise, which chronicles her life and shares her...||11 1 2017||Free||View in iTunes|
||CleanEpisode 17: Tre and Latanya - life with arthrogryposis and autism||After two miscarriages LaTanya and her husband Greg had their son, Tre. After Tre's birth he was diagnosed with arthrogryposis, a condition which causes multiple joint contractures throughout the body. At age seven, Tre was also diagnosed with autism....||31 12 2016||Free||View in iTunes|
||ExplicitEpisode 16: Eva and Tessa with special guest host Kelsey Dilts McGregor||In this episode the tables turn and Tessa gives up her spot as host and becomes the guest to share her own special needs parenting journey. With special guest host Kelsey Dilts McGregor, Tessa talks about her journey with Eva, from her pregnancy to...||30 11 2016||Free||View in iTunes|
||CleanEpisode 15: Frankie and Carrie - life with Mowat Wilson and West Syndrome||For the first 18 months of Carrie and Gabe's son, Frankie's, life, he was in and out of hospital trying to get on top of infections and seizures caused by a rare combination of Mowat Wilson Syndrome and infantile spasms, or West Syndrome. Now, they...||31 10 2016||Free||View in iTunes|
||ExplicitEpisode 14: Victoria and Ashley||Ashley Jones and her husband Keith had no idea of the rollercoaster ride they were going to get on when they had their first child, Victoria. Victoria, who is now a happy toddler, was born with a tracheoesophageal fistula (TEF) which is an...||30 9 2016||Free||View in iTunes|
||ExplicitEpisode 13: Amy Street with Bella Pacific Media||Amy Street is the new web series from Bella Pacific Media which tells the stories of 9 residents at the Supported Lifestyle Hauraki Trust in Thames, NZ. The Trust is houses and takes care of more than 60 adults with disabilities. It's more than...||10 9 2016||Free||View in iTunes|
||CleanEpisode 12: Ali and Angela - living with F.O.P||After years of battling to find a diagnosis, Angela and her husband Gabe finally got one for their daughter Ali when she was five years old. Ali had Fibrodysplasia Ossificans Progressiva, and her body was slowing turning itself from muscle to...||31 8 2016||Free||View in iTunes|
||ExplicitEpisode 11: Fiona and Heather - living with Wolf Hirschhorn Syndrome||This episode features the amazingly talented writer, Heather Kirn Lanier, who writes the beautiful blog Star in her Eye, telling her story about her daughter Fiona. Fiona was diagnosed with Wolf Hirschhorn Syndrome, or 4P deletion after doctors noted...||31 7 2016||Free||View in iTunes|
||CleanEpisode 10: Dylan and Kim - life with CHARGE Syndrome||When Kim and Roy's son Dylan was born deafblind and with heart and kidney abnormalities 20 years ago, they didn't react the way you might expect. The loss of their first son Kyle, and a later miscarriage meant that while some might be plunged into...||30 6 2016||Free||View in iTunes|
||CleanEpisode 09: Vivian and Meghan - living with Dravet Syndrome||Meghan and her husband Brian never thought they would be moving almost 2,000 miles across the United States for their daughter to be treated with medical marijuana. But when their baby daughter, Vivian started having seizures due to Dravet...||18 5 2016||Free||View in iTunes|
||ExplicitEpisode 08: Stacey and Thomas||This next episode is only the second time I have been able to interview a family in person. I drove up to Warkworth, NZ to meet and talk to Stacey Dodd and her son Thomas. Stacey and her husband, Joe, are the parents to Thomas. Thomas is an...||1 5 2016||Free||View in iTunes|
||CleanEpisode 00: An introduction||It's here! The first ever episode of The One in a Million Baby podcast. It's not perfect, but nothing is. This episode is a starting point, a way to begin. It's my way of introducing listeners to me, to Eva and to our story. It's my way of...||3 4 2016||Free||View in iTunes|
||CleanEpisode 01: Jacob and Jen||Months ago, I emailed a group of mothers who I have met through various means, but mostly through the blog. They all have children with extra needs, whether those are medical, educational, physical, or all of the above. I was planning an essay...||3 4 2016||Free||View in iTunes|
||CleanEpisode 02: Thomas and Cassie - living with quadriplegic cerebral palsy||I first met Cassie when we were both pregnant. I asked a panicky question about nuchal measurements in a Huggies mothers' forum and she was one of the people who replied. At the time she was in hospital on bed rest at around 24 weeks pregnant. We...||3 4 2016||Free||View in iTunes|
||CleanEpisode 03: Chiara and Natalie||I first discovered Natalie and her beautiful daughter Chiara not long after Eva was born. I was in desperate need to find community and comfort, and Natalie's blog and her sense of realness combined with her beautiful optimism, was a calming balm for...||3 4 2016||Free||View in iTunes|
||ExplicitEpisode 06: Adonis and Zinzele||This episode marks a special point for the podcast, because Zinzele is the first parent to contact me as a result of the podcast itself. She emailed me shortly after my first episode aired and said she would like to be part of...||3 4 2016||Free||View in iTunes|
||ExplicitEpisode 04: Lydia and Danae - part 1||The podcast has had a break. A long break really. But it's back. I am so incredibly proud to introduce my next guest. I met Danae online before Eva was even born. She came to play a very important role in my life, and in Eva's, and I'll be...||3 4 2016||Free||View in iTunes|
||ExplicitEpisode 5: Lydia and Danae - Part 2||In the first part of this episode I introduced Lydia and her mother Danae. We heard about the challenges they have faced not having a diagnosis for Lydia, and how they have come to cope with her relentless seizures. In this part of the episode I...||3 4 2016||Free||View in iTunes|
||ExplicitEpisode 07: Evie and Rachel- The Super Power Baby Project||It is my pleasure and honour, and just well I'm giddy, to announce my next guest on the podcast, Rachel Callander, the creator of The Super Power Baby Project. When Eva was just a few weeks old, Ess, who I would soon live with with Eva, sent me a...||3 4 2016||Free||View in iTunes|
One in a million baby podcast 00
I’ve been looking forward to this and it is all I had hoped for. The podcasts to come promise to be honest, challenging and also a joyful expression of lives we often don’t get to hear about. Thank you Tessa for seeing this project into realisation. You share your indomitable spirit with Eva.
One in a million baby episode 3 Chiara
This is a must listen. Honest, moving, sad but also uplifting. It made me want better support for mothers and families especially when the baby is facing an uncertain future. That support should come before parents are drained and on the edge of collapse. Huge credit should go to Chiara's parents. And to Tessa for bringing this story to us.
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