100 episodes

Our monthly educational webinars feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts

MitoAction Expert Series MitoAction

    • Science
    • 4.4 • 24 Ratings

Our monthly educational webinars feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts

    Aging with Mito

    Aging with Mito

    Dr. Mark Tarnopolsky, founder, CEO and CSO of Exerkine Corporation, a biotechnology/nutraceutical company developing therapies for aging, obesity, muscular dystrophy, and mitochondrial disorders, discusses aging as it relates to mito in this Expert Series recording.
    Original Airdate: June 16, 2023

    • 1 hr 18 min
    Mitochondria and Psychiatry

    Mitochondria and Psychiatry

    This presentation will discuss mitochondria and psychiatry and cover the evidence that for a subset of people with bipolar disorder, mitochondria may be dysregulated in the brain. Medications used for bipolar disorder can change mitochondrial function and several novel strategies can target mitochondria.

    • 1 hr 7 min
    Wondering Wednesdays: Ask the Genetic Counselor Episode 1

    Wondering Wednesdays: Ask the Genetic Counselor Episode 1

    Join us for this monthly expert series where we dive into what a genetic counselor is, what they do, how they can help you in your diagnostic journey, and some mito genetics 101.

    • 1 hr 12 min
    Mito Town Meeting

    Mito Town Meeting

    The annual mito town meeting is our way of kicking off the new year by sharing all that we have in store for the next 12 months! We will hear from organizations and companies around the globe that have special opportunities, programs and projects for patients and families affected by mitochondrial disease.

    • 2 hr 14 min
    Grief and Mito

    Grief and Mito

    The only thing universal about grief is that it’s universal, something we’ll all experience at some point in our lives. It’s messy, hard, non-linear, and while it may change, grief is never ending. The complexities of being a parent, caregiver, or patient in the mitochondrial disease community adds many layers that impact the grieving process. Join us as chaplain and author Becky Sansbury leads us in a discussion with Jessica Fein and Adam Johnson, about the different kinds of grief we experience throughout the mito journey.

    • 1 hr 15 min
    Transition Tips for Patients and Parents

    Transition Tips for Patients and Parents

    Join Dr. Jordan Kemere as she discusses different components of healthcare transition including finding adult physicians, insurance changes, and transitioning to adult life. She will offer practical tips to parents and caregivers to start working on transition even at a young age.

    • 1 hr 3 min

Customer Reviews

4.4 out of 5
24 Ratings

24 Ratings

shawneylamm ,

Great resource

This is a great resource for patients and families living with mitochondrial disease.

LeslieJH5 ,

Thank you is not enough

I have had a Mitochondrial Disorder for over 10 years now. I am 53 years old. Listening to some of these podcasts have helped me understand how to put into words how I have felt all these years.
Thank you

HealthnPropserity ,

Thank you,

Just figuring out this has been underlying undiagnosed problem my whole life. Great help in leading me to find the docs I need to deal with this. Very grateful for your work.

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