By Johns Hopkins Digital
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Johns Hopkins EpiWatch™: Track Your Epilepsy Seizures. Track Your Treatment.
EpiWatch is an Apple Watch app and research study for adults with epilepsy. By downloading the app, EpiWatch allows adults with epilepsy to track their symptoms, seizures, medication and potential triggers, and share the data with Johns Hopkins researchers. The data will help influence the creation of a seizure detection app in the future. Participants will be able to view information they enter into the app at any time. A dashboard allows for summary data to be viewed with caregivers and physicians. EpiWatch also enables participants to send a message to a family member or caregiver to let them know when they are tracking a seizure. Learn more at www.hopkinsmedicine.org/epiwatch.
How the App and Study Work
EpiWatch enables you to take surveys, enter daily journals and participate in other activities so you and Hopkins researchers can better understand your entire experience—your seizures, treatments and medication side effects. The app also includes a medication journal, as well as an interactive game to measure a seizure’s impact on your responsiveness.
EpiWatch integrates with Health App to augment heart rate, accelerometer and gyroscope data collected by both iPhone and Apple Watch. Johns Hopkins researchers will use this data to measure changes in your heart rate and movement during a seizure.
EpiWatch is not a seizure detector. You should not rely on EpiWatch to get help for your seizures.
You can participate if you are at least 16 years old, a U.S. resident and …
• Own an Apple Watch that is paired with iPhone running the latest version operating system.
• Have epilepsy and have had at least one seizure in the past year.
• Not have any major learning or physical disabilities that would impair your ability to interact with the app while participating in this study. (NOTE: Family and caregivers may help you carry out some of the activities of the study.)
• Be able to open this app on Apple Watch at the beginning of at least some of your seizures. If you tend to experience auras, or warning sensations, you may be able to perform the tasks needed for this study.
• Caregivers or family members may also open the app for you, if you are unable.
This app is designed for research and education purposes only. This app is not meant to provide medical advice, attention, or treatment.
Please note: SMS should not be depended upon by patients and their caregivers to get emergency help for seizures. Even though EpiWatch provides an SMS feature which can alert a caregiver using their mobile phone number, there are multiple factors that could impede, prevent or delay an SMS message alert from being received by the intended recipient.
Principal Investigator: Gregory Krauss, M.D. | IRB00077237
EpiWatch™ is a trademark of Johns Hopkins University
What's New in Version 1.1
• Daily survey can now be completed on Apple Watch!
• Daily survey improved with even more concise user flow
• Initial animations improved to provide clearer instruction
• Post-seizure survey updated to include rescue medication information
• Medication Tracker visuals improved for more clarity, including the addition of time when a dosage is taken
• Performance and accuracy improvements for how seizure sampling data is collected from both the iPhone and Apple Watch
• SMS messaging improved for clarity
• Seizure calendar improved with more obvious date status
• Bug fixes
Note to Users: We encourage you to help with the EpiWatch app research by contributing feedback on your experiences using the app. If you have personal vignettes about your use of the app or suggestions for new support activities you would like added, please contact us at EpiWatch@jhmi.edu
Having trouble opening app on watch. There is also a very problematic question on the initial survey that asks if you're employed full time/part time/unemployed/disabled. You can't choose more than one, so are you saying that disabled people can't be employed/unemployed if you're disabled?? Makes no sense. And this app is literally for people with epilepsy, aren't we disabled in some people's standards? Also unable to add medications if it's not on the list, so I can't record the other medications I take. If these things are fixed I'm sure this app system will be really beneficial.
Sorry to say but so far in my experience the app is kinda buggy. It asks for information that you can't then input. It has a hard time syncing with your watch at times. The watch app seems to kill my watches battery much more quickly than I am accustom to. Normally my watch has at least 35% battery at bedtime,today it was depleted at 5PM. I understand they are attempting to do great things but if the app isn't ready for prime time maybe they should hold off til it's in a lil better state.
No Updates Since Feb 2016
It seems this app has been abandoned, as there has not been an update in nine months as if this writing. Two information requests to the email listed in the app received no response. Watching Tim Cook speak about EpiWatch in the keynote gave me hope and excitement that wearables are moving in the right direction. I live with epilepsy, and this research must be continued. The abandonment of this app after such fanfare feels like a betrayal, as if Apple and JH regard epilepsy not as a serious condition, but simply as window-dressing for momentary marketing convenience.
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- Category: Health & Fitness
- Updated: Feb 19, 2016
- Version: 1.1
- Size: 94.6 MB
- Apple Watch: Yes
- Language: English
- Seller: The Johns Hopkins University
- © Johns Hopkins University School of Medicine
Compatibility: Requires iOS 9.0 or later. Compatible with iPhone 5s, iPhone 6, iPhone 6 Plus, iPhone 6s, iPhone 6s Plus, iPhone SE, iPhone 7, iPhone 7 Plus, and iPod touch (6th generation).