By American College of Rheumatology
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The Lupus Companion is a symptom, medication and appointment diary for people living with Systemic Lupus Erythematosus (SLE). The Lupus Companion makes it easy for you to record how you are feeling day-to-day
and to present the information to your doctors in an easy to read format. The more you use it, the more it helps. Developed by doctors, with significant input from patients, the app has multiple features that will help you and your doctor monitor your flares and inform your treatment plan.
* Track your pain, fatigue, rashes and other symptoms as they occur. With the simple swipe of a finger you can record the severity of your symptoms on a scale of 1 to 10.
* Take a quick questionnaire every three months to monitor your overall disease activity.
* Keep an accurate record of your condition.
* Help all of your doctors share the same information about your care.
* Keep track of your medications and dosages.
* Keep your providers' names, contact information and notes in one place.
* Keep track of your appointments.
* Get answers to basic questions about lupus.
* Share the information with your doctors. When you do, your doctors can:
--View your entries over time in a graph.
--Review your answers to a validated, functional instrument for monitoring disease activity (Systemic Lupus Activity Questionnaire or SLAQ).
--Keep track of your medications and dosages.
--Know when you have appointments with other doctors.
--Possibly help you identify triggers and trends that affect your health.
The Lupus Companion is an educational tool. It is not a medical device. It is not a substitute for a medical device, medical care or medical advice. It does not provide diagnosis, care, mitigation, treatment, or
prevention of any disease. If you have questions or concerns about individual health matters or management of your disease, please consult
your lupus care team. This project was supported by Grant Number 7 MPCMP111064-01-00 from the U.S. Department of Health and Human Services
Office of Minority Health (HHS, OMH) in partnership with the Office on Women's Health (OWH) and Office of the Surgeon General (OSG). Its contents are solely the responsibility of the American College of
Rheumatology and do not necessarily represent the official views of the HHS, OMH.
Good start but needs work.
This is a good start to this app but I can see where it needs a bit of improvement. Other apps such as my pain diary allow you to not only track your symptoms but incorporate pictures of rashes and graph all symptoms together. They also allow me to export all this info to my doc and the end of each month. I'd like to see those features on this app.
Being able to access your contacts and calendar would also be a help rather having to re type things into this app that I already have in other places on my phone.
I think it's a good start but it will need some improvements before this becomes my go to app to monitor my disease.
Good app, but needs a few things to be great!
I like this app for the most part, and the features it has work well. However, it would be very helpful to be able to generate 1 graph that combined all my symptoms, as I don't find viewing them separately very useful. I would also really like the option to attach a photo when making an entry of a symptom, as I keep a photo diary of skin lesions for disability reasons, because these are one of my worst symptoms.
A good start.
As far as I know, this is a brand new app. I've been playing around in it and live the idea of tracking flares, symptoms, meds, etc. after answering the questionnaire (twice in fact), the data int saved that I can see. There's a place to look at results of questionnaires but my info isn't there. I'm a psychologist so analyzing data is what I do. I'm excited there might be something that just needs tweaked here in this app.