Orphanet, an INSERM service, allows you to access a list of rare diseases, their description and associated resources.
- Consult the Emergency guidelines directly.
- Find contact details of expert clinics and professionals.
You can bookmark pages and PDFs you want to find again in one click thanks to a dedicated feature. It is also possible to annotate some of the pages.
LANGUAGES: English, French
Orphanet website: http://www.orpha.net
Orphanet support email: firstname.lastname@example.org
Minor bug fixes
Remote data update
Multi-lingual push notifications
Ratings and Reviews
Excellent App, but...
...it needs to be updated to 64-bit compliance to so the user base can continue to use it, now that iOS 11 and beyond no longer support 32-bit applications.
Please, please, please, update this app, Orphanet! You have a wealth of important medical information that needs to be available to the widest possible base of people! Please, let us iOS users back in.
Finally a resource I can access as a caregiver and hand to an ER doctor during an attack. Much more credible than photocopied handouts from individual organizations.
Now if there were only an app for the NAPOS drug lists.
With Family Sharing set up, up to six family members can use this app.