iPhone Screenshots

Description

How can we together better manage the symptoms of Parkinson disease?

Living with Parkinson disease means coping with symptoms that change daily. Yet these daily changes are not tracked frequently enough. Parkinson mPower is a personal tool and research instrument to track symptoms of Parkinson disease, review trends and share this information with researchers.


Sage Bionetworks, a 501(c)(3) nonprofit research organization in collaboration with University of Rochester welcomes you to use Parkinson mPower to track your symptoms and take part in the world's largest and most comprehensive study of this disease.

The Parkinson mPower app uses questionnaires, sensor data from your phone and optional wearable device data to help you track your condition 24x7.

Key Features:
● Innovative activity-based measurements of Parkinson symptoms that include a memory game, finger tapping, voice recording, and walking.
● Share insights and partner with researchers
● Get educated about symptom variations
● Import daily physical activity measurement though Apple Health app

Eligibility:
To join this study you need to:
• Be 18 or older
• Have Parkinson disease or not (be a control).
• Be a U.S. resident
• Have a personal iPhone 4S or newer running iOS 8.0 or above and is compatible with latest generation iPod touch.

This app will read and/or write data from Apple's Health App with your permission.

Together we are taking a bold first step to establish a partnership between you and Parkinson researchers in ways that will help us learn from one another. Install Parkinson mPower app today and let’s work together to better understand this disease.

Continued use of GPS running in the background can dramatically decrease battery life.

Note: After you join the study, we will send you a copy of your signed consent form to your email address. Please check your spam folder if you do not receive it.

What's New

Version 1.4.1

Fixes a bug found in 1.4 where sometimes the PIN keypad would be invisible.

Ratings and Reviews

Unclear if non-Parkinson's people should download

A._B.

The description seems to say they want both Parkinson's and non-Parkinson's people to download and use.

When I downloaded it, the questions seemed geared to people who have Parkinson's; I don't. I'm happy to serve as a "control" if they want - it just needs to be clear if I'm going to invest time. Also, if they don't, I'm potentially muddying their data collection.

Also, if they do want non-Parkinson's people they might consider:
1. Including similar serious movement disorders ("Parkinsonisms") such as PSP, CBGD, etc. in their screening questions.
2. Including less serious movement disorders (essential tremor, restless legs) that may or may not have links to Parkinson's in their questions.
3. If using "controls", have them identify any existing movement disorders (such as essential tremor) or a family history of Parkinsonisms.

I suspect that many non-PD folks downloading the app may be unusually motivated (PD in family or they themselves have something milder). If so, that could bias the control results. Also, there may be people diagnosed with other severe movement disorders downloading the app; if so it would be useful to segregate their data from classic Parkinson's sufferers.

This is a potentially valuable app in the fight against a really awful disease. I hope this initiative succeeds!

It's up to you.

ScienceGirlx

It's up to you if you want to use the app for the study. I think it's for a good cause but the fact that they are using your data on a server that isn't there own makes you concerned of your own privacy. It's up to you if you want to see what it's like in the study I recommend it. But as of right now, I don't think I'll do the study until they find a better security feature. 5 stars.

Admirable mission, overly demanding execution

RPS90483

Was interested in helping out with this study, however I don't think the app makes it clear whether non-Parkinson's affected individuals should participate or not.

The bigger issue for me and I imagine many others is the amount of time you need to interact with the app each day. The expectation should be set upfront more clearly how many little tasks you have to do each day and for what duration of time until the study finishes.

I have to believe that participation has dropped way off due to this.

Information

Seller
Sage Bionetworks, a Not-For-Profit Research Organization
Size
98.2 MB
Category
Medical
Compatibility
Requires iOS 9.3 or later. Compatible with iPhone and iPod touch.
Languages
English
Age Rating
You must be at least 17 years old to download this app.
Frequent/Intense Medical/Treatment Information
Infrequent/Mild Alcohol, Tobacco, or Drug Use or References
Copyright
© 2015-2017, Sage Bionetworks
Price
Free

Supports

  • Family Sharing

    With Family Sharing set up, up to six family members can use this app.

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