Phendo is an observational research study to establish a catalog of the signs and symptoms of endometriosis as experienced by you, people with endometriosis. In addition, opportunities to reflect upon your collected data may help you in managing your disease.
Columbia University invites you to join this study about endometriosis to enhance understanding about the disease.
You can track your experience of endometriosis in Phendo at your convenience, track more or fewer signs, symptoms, comorbid conditions, and self management information, or stop tracking at any time.
How this study works:
- You will be able to join the study after signing the consent form.
- We will ask you to track individual instances of symptoms and signs of the disease as they occur using the “track this moment” feature.
- We will ask you to track endometriosis symptoms and signs of the disease at a daily level through “track this day”.
- You will be able to review items through time as you enter them into the app.
- All information collected will be stored separately from user name using an id number.
Who is eligible to participate?
- Adolescents and adults who have reached the onset of menarche, that is, who have had at least one menstrual period.
- Those under the age of 18 will need parental permission to participate, and parents or guardians will be asked to co-sign consent.
- Adolescents and adults who have experienced symptoms of endometriosis in the past 3 months.
Who is running this study?
- Researchers from Columbia University’s Department of Biomedical Informatics as part of the Citizen Endo research project.
Phendo - A study to track, manage, and understand endometriosis.
- Introducing Tracking Challenges for the Phendo community
- New Insight tab displays bleeding patterns, how was your day, and how much tracking happened over the past 30 days.
- New Citizen tab shows how much you contributed to the Phendo study and provides daily updates about tracking challenges
- Updated Review tab with breakthrough bleeding and periods icons
- Lots of bug fixes
Ratings and Reviews
Needs a little work
I love that this app asks the questions that I don’t seem to be asked by anyone, with symptoms that have not been communicated to me as being related to endo. I love that I have the ability to track my day in general and options to track specific moments.
With that being said, half of the time the app does not log my entries and does not count anything toward my tracking history. I would love to see a trend section to compile all of the symptoms experienced so I can communicate these experiences with my doctor.
Other than that, it’s a very good app.
So I haven’t used the app for super long but so far what I’ve seen is great for tracking cause and affect of certain foods or activities in your own experience with endo. I’ve only known about mine since about April this year (2018). But I’ve been struggling with symptoms for years now. This is a great way to get awareness out for endo but also great for your own health to track what’s flaring up and what might have caused it.
This app is really comprehensive with symptoms and it’s easy to use. It’s also exciting to be part of research to find answers for endometriosis.
- Applied Informatics, Inc.
- 63 MB
- Health & Fitness
Requires iOS 9.0 or later. Compatible with iPhone, iPad, and iPod touch.
- Age Rating
- Rated 12+ for the following:
- Infrequent/Mild Medical/Treatment Information
- © Applied Informatics
With Family Sharing set up, up to six family members can use this app.