This app is a personalized tool designed to deliver informational resources about sarcoidosis, supplying links to disease information and advocacy groups, as well as information about local specialists and support groups. Users also have the ability to opt-in to a research study, which will provide researchers with important data about this rare disease. There will be optional, once-a-month surveys that ask users about how sarcoidosis affects their lives, paired with passive data collection from background health apps, such as step-tracking. The insights gained from this study may help raise awareness of the impact of sarcoidosis, with the ultimate goal of improving quality of life for people with this disease.
Migrated to the Medable Axon Platform, Added Air quality data capture
Ratings and Reviews
Nice to be able to contribute to medical research to learn more about this awful disease!
Really glad to see this app.
Ever since I was diagnosed in 3/2016 I have wanted to join a study to further research this disease. Very easy to use. One thing I would add is a place to ask a question for the study team.
- The Trustees of the University of Pennsylvania
- 55.7 MB
- Requires iOS 11.0 or later. Compatible with iPhone, iPad, and iPod touch.
- Age Rating
- You must be at least 17 years old to download this app.
- Frequent/Intense Medical/Treatment Information
- © 2017 The University of Pennsylvania
With Family Sharing set up, up to six family members can use this app.