Courage Under Wraps
Photographic Documentary of Nicholas Zahorcak Living with Epidermolysis Bullosa
This book can be downloaded and read in iBooks on your Mac or iOS device.
This is an in depth photographic documentary of a young boy named Nicholas Zahorcak with a rare genetic disorder called Epidermolysis Bullosa. Part of the proceeds will go to EBMRF (EB Medical Research Foundation) www.ebkids.org
My son’s life with EB
This is the amazing and true photographic “Day in the life” of my son’s life with Epidermolysis Bullosa. He was diagnosed at birth with the Recessive Dystrophic form of this condition. Jodi spent 2 years photographing him during his day to day life, the trips to the Hospital, the holidays, bandage changes and school.