A Special Storey
By Steven and Sharon Storey
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A podcast about raising young kids with special needs. Our daughter, Lulu, was diagnosed with Down syndrome at birth. Our son, Max, was diagnosed with Sensory Processing Disorder around the age of 3. Our lives are crazy, chaotic, and can be challenging. But we love every second, and wouldn't change it for the world!
||CleanEpisode 19 - Celebrating World Down syndrome Day||--||3/20/2019||Free||View in iTunes|
||CleanEpisode 18 - Easy Sensory Processing Tips and Tricks||In this episode, we discuss some of the easy modifications we've made to help with common Sensory Processing Issues. We also highlight our current Occupational Therapist, and Sharon tells the non-efficient way she found them.||3/13/2019||Free||View in iTunes|
||CleanEpisode 17 - Our Experience with Sensory Processing Issues||--||3/6/2019||Free||View in iTunes|
||CleanKids Book Recommendations for Healthy Lifestyles||--||2/27/2019||Free||View in iTunes|
||CleanEpisode 15 - Honoring the Heroes of Heart Awareness Month||--||2/20/2019||Free||View in iTunes|
||CleanEpisode 14 - The Official, Ultimate, Trademarked, Pro/Con List to Having the Flu||We have some fun this week discussing how we handled most of the house coming down with the flu, and how a fever led Sharon to come up with her Official, Ultimate, Pro/Con List (TM). Sharon claims that having the flu led her to believe in the power ...||2/13/2019||Free||View in iTunes|
||CleanEpisode 13 - Our Thoughts: On the Sibling Dynamic When One Has Special Needs||Today, we recap Max's amazing interview, and give our thoughts on some of the things he said. We share which of his thoughts and feelings surprised us, including some that he had never actually shared with us before. We also give our take on what ma...||2/6/2019||Free||View in iTunes|
||CleanEpisode 12 - Max's Thoughts: What It's Like to Have a Sibling with a Special Need||In this episode, we hear from our 7 year old son, Max, on what life is like as the older brother to a child with special needs. We discuss all of the things he loves about life with Lulu, but we also get real about the hard and stressful parts, incl...||1/30/2019||Free||View in iTunes|
||CleanEpisode 11 - What That Crazy Winter Taught Us as Parents||--||1/24/2019||Free||View in iTunes|
||CleanEpisode 10 - Lulu's Winter of Drama, Part 2||The effect of Lulu’s seizure medication, and her subsequent hospitalization several weeks later. We also discuss why her experience with RSV didn’t follow the normal progression, and what it felt like to be in the hospital for 10 days. Finally, we w||1/17/2019||Free||View in iTunes|
||CleanEpisode 09 - Lulu's Winter of Drama, Part 1||Lulu’s first winter, and the beginning of some fairly serious health problems that started when she was about six months old. On December 31st, 2015, she had her first seizure, and we talk about the process we went through to get the diagnosis confi..||1/10/2019||Free||View in iTunes|
||CleanEpisode 08 - Our favorite stories from 2018||A Merry Christmas and Happy New Year to all!In this episode, we recap our Christmas dinner experience, and a secret party that we didn't talk about beforehand. Sharon shares how all the end of the parties makes her feel...until she realizes that...||1/2/2019||Free||View in iTunes|
||CleanEpisode 07 - #wouldntchangeathing Christmas video||We discuss our last minute Christmas shopping, and our plans to host our first Christmas dinner ever. Steve learns what a "tablescape" is, and objects to the term on principle. We review what we got the kids for Christmas, and which gifts have educa...||12/26/2018||Free||View in iTunes|
||CleanEpisode 06 - The Community We've Found||First, we are in desperate need of gift ideas for our parents. What are your best gift ideas??Also, both of our kids are now sick, ironically. This of course happened the week after we released our podcast on beating cold and flu season. b...||12/19/2018||Free||View in iTunes|
||CleanEpisode 05 - How We Handle Cold and Flu Season with a Medically Fragile Child||When Lulu was a baby, she had some severe respiratory issues due to her heart condition. We talk a little bit about some of the readily-available products we found to help her stay healthy and out of the hospital!Check out the show notes (wi...||12/12/2018||Free||View in iTunes|
||CleanEpisode 04 - The Top 5 Things We Love about Having a Child with Down syndrome||Episode Recap: 01:00 We recap our second out of town trip in two weeks, and why going on vacation can sometimes make you want to take another vacation!02:05: Sharon describes her first Sharon-panic over a child coughing, and wha...||12/5/2018||Free||View in iTunes|
||CleanEpisode 03 - What to Say When a Friend Gets a Down syndrome Diagnosis||Happy Thanksgiving!!We recap our trip to Charleston, including our favorite stop at Bitty and Beau's Coffee Shop. We also give a full history of the Apple Cup (kidding!), and explain why we essential blame Costco for almost-sort of-not-reall...||11/29/2018||Free||View in iTunes|
||CleanEpisode 02 - How We Really Felt About Getting a Down syndrome Diagnosis||- We recap our Halloween party, and discuss our Thanksgiving plans!!- We talk about the moment that the Down syndrome diagnosis became "official", and what that felt like. We also discuss some of the feelings that come with the diagnosis, and ho...||11/22/2018||Free||View in iTunes|
||CleanEpisode 00 - A Special Storey Intro||We discuss who we are (nobodies) and what our qualifications are to start a podcast (none). And yet, here we are!We also discuss our two kids, who have thrown us into the world of special needs parenting. Our daughter, Lulu, has Down syndrome, a...||11/12/2018||Free||View in iTunes|
||CleanEpisode 01 - The Story of Lulu||We talk about Sharon's obsession with Fall, Halloween, and her potentially controversial decorating schedule. We also tell the story of Lulu's Down syndrome diagnosis, which happened about an hour after she was born, and some of the thought...||11/12/2018||Free||View in iTunes|
Thanks for sharing your special story
I love their play on words in the title, and in this podcast, Sharon and Steve are truly sharing a special story. I love how they play off each other in the episodes and provide their unique perspectives. I've truly learned so much from listening to this podcast, and each time I finish one, I have a renowned optimism that there is more good in this world than bad. I can't wait to hear what else they share in the future!
Cute, fun, witty and real!
This podcast is so heartfelt and real, yet also fun and lighthearted. Sharon and Steve share their stories about having children with special needs, giving new insights to people like me who don’t have children with special needs and may not know what it’s like. I have learned so much from you both. Can’t wait to hear more about your journey!
Look forward to these every week! I would recommend this podcast to anyone, whether they share similar experiences or just want to learn more about what it’s like to have children with special needs! Seriously, I love listening to all the stories and it makes my commutes so much better! :)