Kaleidoscope: The Cortical Visual Impairment Podcast
By Jessica Marquardt: Parent Advocate for Children with CVI, Sharing Stories of Neuroplasticity and Visual Perception
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Cortical visual impairment (CVI) is the leading cause of pediatric visual impairment in the developed world. But there's hope. Due to the brain’s ability to change (neuroplasticity), a child's vision can improve. So why isn't anyone talking about this public health crisis? We will. Tune in for a monthly discussion. Music by Storm Crews. Art by Ian Kleinfeld.
||CleanWhen Your Daughter Has a Visual Impairment, and Your Niece Does Too | Anna Ault & Lori Kinney | 6||Sisters raise kids with two types of VI – one is brain-based, the other eye-based||10/31/2018||Free||View in iTunes|
||CleanLife With CVI and Perfect Pitch | Dagbjört Andrésdóttir | 5||What is it like to learn you have cortical visual impairment as an adult?||9/23/2018||Free||View in iTunes|
||CleanWhat Happens When Things Go Right? | The Rastogi-Wilsons | 4||A premature infant gets a diagnosis and appropriate early intervention||8/18/2018||Free||View in iTunes|
||CleanGoing All In: From Phase I to Phase III | Alisha Waugh | 3||Perkins-Roman CVI Range Endorsed O&M specialist helps her son improve his vision||7/18/2018||Free||View in iTunes|
||ExplicitThe Early Days: A Mother's First Year on the CVI Journey | Rachel Bennett | 2||A new CVI diagnosis helps a mom understand why her son is so frustrated. He can't interpret what he sees.||6/5/2018||Free||View in iTunes|
||CleanTesting. Are CVI Parents Out There? | The Marquardts | 1||We had no idea that our daughter's vision could improve||5/17/2018||Free||View in iTunes|
Finally a chance for families to speak for themselves. Your poscast is informative, poignant, and meaningful. Thank you so much for the generousity you demonstrate in the sharing of your story. I am so grateful for your contributions.
Keep up the good fight
I met Dan Sunday evening by chance in KWF, we exchanged pleasantries and then he shared your story and told me about the pod cast. It was inspiring, insightful and courageous to hear your personal story(plus a little disappointing- especially the hesitation&cya from your local education system even after you offered to pay for training for the teachers in Grace’s class - shame on those administrators). I’m sure Grace and the great work you and Dan are doing advocating for CVI will bring exposure and help many others. Stay strong and keep up the good fight.
Are CVI parents out there? I am, and I’m listening! Looking forward to learning more about the journeys of your family and others. I appreciated your pilot episode. It was at once pragmatic and idealistic, vulnerable and humorous - dichotomies I can relate to as a special needs parent.