Mighty Casey Media: Healthcare Is HILARIOUS‪!‬ Casey Quinlan | Mighty Casey Media

This week, I’ve got my conversation with e-Patient Dave deBronkart. Dave became e-Patient Dave back in 2007 when he got a really big surprise - a diagnosis of terminal kidney cancer. Definitely NOT the kind of surprise anyone wants.

Spoiler alert - it wasn’t terminal, but it was certainly Stage 4, Grade 4, death sentence style cancer.

It wasn’t terminal because his doctor told him to check out a patient community forum for kidney cancer. Dave did, and the rest is literally history. The patient forum tipped him off to a treatment option that saved his life, so he’s in the bonus round for almost 12 years now. For which I am grateful, since he and I have only been buddies for the last 10 years.

Full show notes and links: https://www.patreon.com/posts/e-patient-dave-24864784

This week, it’s all Mighty Mouth, all the time. In other words, no guest, just yours truly.

I’m asking you to settle in, grab a cup of coffee - or you might want a big ol’ slug of bourbon for this one? - and listen as I spin a tale of lies, damn lies, statistics, and treachery, with the main bad actor of the piece being that thing that over two billion humans across the globe have become addicted t0: Facebook.

Why is a snarky healthcare podcast talking about Facebook? Welp, because the Book of Face has become the place where people facing health challenges go to find peer support, resources, research opportunities, and community while they face everything from cancer to neurological conditions to medical error to joint replacement. By the way, I’m not linking to any groups in the show notes. You’ll figure out why as I go along here.

Got your coffee? Your bourbon? Your coffee with bourbon in it? OK, here we go.

Full transcript and links here: https://www.patreon.com/posts/facebook-is-hole-24368777

image credit: kc green | gunshow comic
http://gunshowcomic.com/648

This week, you’ll hear from John Wilbanks, Chief Commons Officer at Sage Bionetworks. Yeah, that’s most definitely a Nerdus Maximus title, but John does very cool stuff around making data more accessible and usable by the research community AND he’s down with the idea of data as an economic resource for not just the big-money players, but also the humans who create that data.

Full show notes and links here: https://www.patreon.com/posts/john-wilbanks-on-23314230

This episode has some slices from a debate I had with Niam Yaraghi about whether or not people should be cut in on the gold being mined from the data all of us create every day in the digital economy. That happens with all parts of our digital lives, from online shopping to getting medical care.

Full show notes, including the video of the entire debate and a full transcript, are here: https://www.patreon.com/posts/fypmdata-debate-22734144

This week, we’ve got Danny van Leeuwen, Health Hats himself! We met up at the Patient Centered Clinical Decision Support Learning Network annual meeting (mouthful, but it’s healthcare, and healthcare loves long and complicated), where Danny spoke about the patient perspective on pain management, and life in general, for folks dealing with chronic conditions.

Full show notes and links here: https://www.patreon.com/posts/danny-van-my-off-22139401

Hear all about health economics from Jane Sarasohn-Kahn, my bestie who keeps me up to date on all the 411 about impact on the consumer - that’s you and me, folks! - of the health policy arguments and health coverage ideas that happen all day, every day, from sea to shining sea. And beyond. Jane keeps it real, and really understandable.

Full show notes and links here: https://www.patreon.com/posts/healthcare-econ-21979075