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Openly Rare

By Paul Kidwell

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Openly Rare with Paul Kidwell is a monthly podcast covering all aspects of rare diseases and will feature conversations with newsmakers and leaders from the world of biomedical and academic research, patient engagement, caregiving, rare disease patients and their families, as well as others who in some way have been touched by the growing number of rare illnesses. The podcasts will cover a range of topics, including research and treatment, the business and science of rare disease drug development, patient storytelling, policy debates and the cultural impact of rare diseases.  To learn more about Paul Kidwell and to hear the Openly Rare podcast, go to You can also listen to the Openly Rare podcast on Apple Podcasts, Google Podcasts, Stitcher, Tunein, Spotify and with all Android players.

Customer Reviews


With hundreds of podcast to listen to, don’t miss out on Openly Rare. A thoughtful peek into the Rare Disease community and it’s experiences that parents and caregivers face daily. A must listen...

Must listening!!!

Paul Kidwell is a fantastic storyteller who, in this remarkable podcast opens up the world of rare diseases in a new and intelligent way. I’m looking forward to future programs and highly recommend subscribing to this program.

Paul Kidwell is . . .

. . . insightful, knowledgable and well spoken on the topic of rare disease and brings all perspectives into a wider discourse through his talks with guests that study, treat or live with these illnesses. An important topic, an impactful podcast.

Openly Rare
View in iTunes
  • Free
  • Category: Health
  • Language: English

Customer Ratings