By Monika Aldarondo
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PSC Mami: Stories at the intersection of PSC and parenthood. You are diagnosed with a rare, incurable disease. You are young, you are female. You had a vision for your future. You wanted kids. But can you? Women who have been there talk about how a diagnosis of Primary Sclerosing Cholangitis, a rare autoimmune disease, reshaped their vision of their lives and parenthood.
||CleanHeather has 2 girls, a new liver, and joy||Heather was diagnosed with Primary Sclerosing Cholangitis young, then made it through nursing training, graduate school, dating, getting married, and having her first baby before her PSC symptoms started to really affect her quality of life. She...||8/20/2018||Free||View in iTunes|
||CleanEmily has her son post diagnosis and survives UC, PSC, cancer and transplant with optimism||Emily has been battling serious illnesses, PSC, UC since she was 19, and liver cancer at 33. As a mother, she has done her best to create an optimistic life with as little fear for her young son as possible as she has survived a colectomy, cancer...||4/6/2018||Free||View in iTunes|
||CleanNatalie explains to her young sons that mommy’s liver works a little differently||Natalie learned of her PSC diagnosis when her sons were very young. She had been pursuing the “perfect” stay-at-home-mom life and soon discovered that when mother is your central role, PSC will definitely affect how you parent. She shares how she...||3/23/2018||Free||View in iTunes|
||CleanSerbrina and her marriage survive and thrive post-transplant without children||Serbrina and her husband survived a 10-year waitlist for her life saving transplant made necessary by the progression of Primary Sclerosing Cholangitis. While her feelings about motherhood at this stage in her life are complex, she holds possibility...||2/14/2018||Free||View in iTunes|
||CleanKatrina has second child and peace of mind post PSC diagnosis||Katrina’s medical journey began at 15 with her Ulcerative Colitis diagnosis, but as she found experts that provided much needed relief, she was diagnosed with Primary Sclerosing Cholangitis. She discusses her shift in outlook, her support system,...||1/24/2018||Free||View in iTunes|
||CleanJessica decides to not have children and has no regrets||Jessica’s early and intense introduction to life saving procedures means many discussions about IVF, surrogacy, and adoption with her husband, family and friends. She listens to herself and her body and chooses a path, that while not easy, lives up...||12/21/2017||Free||View in iTunes|
||CleanKiersten, a child of a PSCer, has 2 healthy children after difficult pregnancies||Kiersten knew the dangers of Primary Sclerosing Cholangitis as a result of her father’s diagnosis. She faced her own diagnosis as a young adult and found that her PSC had a different progression. In the 3-year window that her doctor gave her, she...||12/7/2017||Free||View in iTunes|
||CleanBritt discusses easy 2nd pregnancy after PSC diagnosis||Britt was diagnosed with Primary Sclerosing Cholangitis when her daughter was 2 years old. Years later she was surprised to find she was pregnant again with her son. She speaks to the emotional process of accepting her diagnosis as a mom, focusing on...||11/15/2017||Free||View in iTunes|