By Larra Morris and Ari Decherd
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A podcast in which Ari and Larra discuss his experiences with Alport Syndrome and his three kidney transplants.
||CleanKidneycast Episode 32: The Big Sick, Zombies, and Vacation||The Kidneycast is back again to recommend The Big Sick, and talk about how we related to the story and loved how it was told. We also chat a bit about zombies and how Aris transplant has allowed us to have adventures that wouldnt have been possible on d||8/7/2017||Free||View in iTunes|
||CleanKidneycast Episode 31: Last Week Tonight’s Report on Dialysis||The Kidneycast rides again! Were back to talk about the recent episode of Last Week Tonight with John Oliver with the segment about private dialysis clinics. Ari and Larra talk about his experiences with the companies mentioned in the report, and how i||5/16/2017||Free||View in iTunes|
||CleanKidneycast Episode 30: The Last Episode (For Now)||Our last regular episode! We wrap things up by talking about Aris current day-to-day health with his current transplant and offer some closing thoughts about his experiences with his disease and what weve learned from making The Kidneycast. Dont worry!||1/30/2017||Free||View in iTunes|
||CleanKidneycast Episode 29: Cytomegalovirus and #NephJC||We talk about Aris most recent hospital stay and his experiences with CMV. We also discuss participating in the #NephJC chat about trying to make sure young transplant patients take their medication, and a new initiative from the National Kidney Foundat||1/23/2017||Free||View in iTunes|
||CleanKidneycast Episode 28: Talking About the Money||What does the financial side of chronic illness look like? Ari and Larra talk about insurance, disability and welfare programs and take some time to discuss the Affordable Care Act.||1/16/2017||Free||View in iTunes|
||CleanKidneycast Episode 27: Kidneys and Organ Transplants in the News||Theres been some new transplant news in 2017! We spend this episode discussing Frances new opt-out organ donation system (and why we think its a better idea than an opt-in system). We also discuss a recent transplant op-ed piece we disagreed with and ta||1/9/2017||Free||View in iTunes|
||CleanKidneycast Episode 26: Coping||How do you cope with a serious chronic illness like Alport Syndrome? This week, Ari shares his coping strategies and challenges, talking about what has worked for him and how other people in his life have helped (and occasionally, hindered).||1/2/2017||Free||View in iTunes|
||CleanKidneycast Episode 25: “Hey, When Are You Guys Going to Have Kids?”||This week, Ari and Larra talk about their decision not to have children and how Aris disease factored into their choice. Plus: a related discussion of one of Aris crazier surgeries. (This episode contains some discussion related to reproductive health.||12/19/2016||Free||View in iTunes|
||CleanKidneycast Episode 24: Proving Yourself and Proving Something TO Yourself||Ari talks about working to finally earn his undergraduate and masters degrees and start teaching music (his dream job!) after his third kidney transplant and feeling like he needed to prove himself after all those years of being unable to attend school||12/12/2016||Free||View in iTunes|
||CleanKidneycast Episode 23: Making the Most of the Kidney Transplant||Aris third kidney transplant means new opportunities and options in his life that werent possible living on dialysis. In this episode, we talk about going back to college in your 30s. We also discuss how the double-blind anonymous donor system works and||12/5/2016||Free||View in iTunes|
||CleanKidneycast Episode 22: Ari’s Third Kidney Transplant||On May 11, 2009, Ari got an early morning phone call that changed everything. This is the story of Aris unexpected third kidney transplant from an anonymous deceased donor.||11/28/2016||Free||View in iTunes|
||CleanKidneycast Episode 21: with SPECIAL GUESTS Martha and Glenn||Were so excited to have Aris parents as guests this week on the Kidneycast! Martha and Glenn talk about their experiences as the parents of a child with Alport Syndrome and Marthas own experiences with the disease and her kidney transplant. (Audio is a||11/21/2016||Free||View in iTunes|
||CleanKidneycast Episode 20: Turning the Tables||Were switching things up this time! The Kidneycast gets a host transplant as Ari takes his turn as the interviewer and asks Larra about being the partner/spouse of a person with a chronic illness.||11/14/2016||Free||View in iTunes|
||CleanKidneycast Episode 19: Dialysis and the City||The kidney and transplant doctors in NYC work a bit differently than Aris previous ones. In this episode, Ari talks about meeting the rest of his new team and about making the most of life in New York while on dialysis.||11/7/2016||Free||View in iTunes|
||CleanKidneycast Episode 18: If You Can Have End Stage Renal Disease There, You Can Have End Stage Renal Disease Anywhere||Ari and Larra talk about moving his home dialysis set-up from Seattle to New York. They also tell one last Seattle story about a potential kidney transplant that didnt happen for Ari.||10/31/2016||Free||View in iTunes|
||CleanKidneycast Episode 17: Organ Transplants and Donation in Pop Culture||Larra and Ari talk about the portrayal of organ donation and transplants in fiction and popular culture. What do fictional portrayals get wrong and why does it matter?||10/24/2016||Free||View in iTunes|
||CleanKidneycast Episode 16: Cross Country with Home Hemo||How do you travel across the country with a home hemo machine? Ari explains the process and also talks about his mothers experiences with Alport Syndrome and her kidney transplant.||10/17/2016||Free||View in iTunes|
||CleanKidneycast Episode 15: Home Hemodialysis||Ari talks all about home hemodialysis. He explains how its different from in-center dialysis, the kind of training he received as a patient, and how dialyzing at home changed his life.||10/10/2016||Free||View in iTunes|
||CleanKidneycast Episode 14: Day to Day on Dialysis||Ari describes what life is like while doing in-center hemodialysis three times a week. He talks about the side effects of dialysis, traveling while on dialysis, and answers listener questions about his hearing aids (and how he wakes up in the morning wi||10/3/2016||Free||View in iTunes|
||CleanKidneycast Episode 13: Love and Renal Failure||Ari discusses life after the failure of his second kidney transplant and the best of times/worst of times scenario he experienced. He talks about his move to Seattle, changing doctors and medical teams, and going back on hemo dialysis. In response to li||9/26/2016||Free||View in iTunes|
||CleanKidneycast Episode 12: The Alport Syndrome Foundation Meeting in New Jersey||Ari and Larra report back from the Alport Syndrome Foundation Family Meeting! Ari talks about what it was like to meet people outside his family who share his disease and discusses the information and emotions from the event.||9/19/2016||Free||View in iTunes|
||CleanKidneycast Episode 11: The Story We Don’t Tell||In one of our most challenging episodes to record, we talk about the failure of Aris second transplant and his struggles with other medical issues and drug side effects that occurred at the same time.||9/12/2016||Free||View in iTunes|
||CleanKidneycast Episode 10: This Weather is Really Messing with My Blood Pressure||After spending a month in the hospital, Ari takes a term off from school to try and recover. When he returns to Central Washington University, school is going rather well. But some bad weather and the side effects of one of his medications combine to cr||9/5/2016||Free||View in iTunes|
||CleanKidneycast Episode 9: We Need to ACCOMMODATE You!||After receiving his second transplant from his uncle Michael, Ari is determined to get back to school, earn his degree, and become a music teacher. He talks about what it’s like to get back to school later in life (and with a chronic illness) and some||8/29/2016||Free||View in iTunes|
||CleanKidneycast Episode 8: Moving On with a New Transplant||After Aris second kidney transplant, he and his medical team took steps to improve the new organs chances in his body. He talks about those procedures, the future plans he made now that he had a working kidney again, and other medical issues that came u||8/22/2016||Free||View in iTunes|
||CleanKidneycast Episode 7: Ari’s Second Transplant||In transplant preparation class, Ari learned that he had become a cautionary tale. He talks about that and his second kidney transplant (donated by his uncle Michael). With no listener mail to stop them, Larra and Ari get pretty geeky at the close of th||8/15/2016||Free||View in iTunes|
||CleanKidneycast Episode 6: Life After Transplant Failure||What happens after your kidney transplant fails? Ari talks about life after his transplant failed and he had to drop out of college, including experiences with in-center dialysis.||8/8/2016||Free||View in iTunes|
||CleanKidneycast Episode 5: The Failure of Ari’s First Transplant||Larra and Ari discuss the failure of his first transplant. The conversation and stories in this episode are on the bleak side, so we attempt to provide balance with singing and a brief discussion of an animated children’s film.||8/1/2016||Free||View in iTunes|
||CleanKidneycast Episode 4: Kidney Goes to College||Larra talks to Ari about his life right after his first transplant surgery. He discusses how being a transplant recipient (and having a chronic illness) affected his first year of college.||7/25/2016||Free||View in iTunes|
||CleanKidneycast Episode 3: Ari’s First Transplant||Ari discusses his first transplant. Larra gives Ari a quiz on misconceptions about organ donation and transplants.||7/19/2016||Free||View in iTunes|
||CleanKidneycast Episode 2: Growing Up with Alports||Ari talks about growing up with Alport Syndrome, when his family became aware of his condition and how his and their understanding of the disease evolved as he grew up. He talks about being sick as a kid, his hearing loss, and how his health grew steadi||7/11/2016||Free||View in iTunes|
||CleanKidneycast Episode 1: Welcome to the Kidneycast!||Our very first episode! Larra and Ari introduce themselves and the podcast, talk about Ari’s genetic condition (Alport Syndrome), and give an overview of his medical history.||7/11/2016||Free||View in iTunes|
Informative and fun!
I’m really glad I tried this out. It’s interesting to hear a personal story about chronic illness. Ari is able to talk about serious subjects about life with his disease with a human perspective that’s informative and real. Not depressing.
Interesting and insightful
This podcast provides an "insider's view" into an often hidden aspect of some people's lives: that of chronic disease or disability. I like the interplay between the two hosts, and I like the insight and honesty provided by the storytelling. I'm looking forward to more.
Even the opening/closing music was good
Husband and wife team Ari Decherd and Larra Morris host this multipart series focusing on the rare genetic kidney disorder that Ari has had to deal with since early early childhood.
This is the sort of subject matter that you generally associate with very somber almost clinical discussion of a topic that impacts such a very small minority of the population. While the Kidneycast does provide useful information about this little known disease it's presented in a fun and entertaining way by a couple whose chemistry shines through. Their clear rapport helped draw me into a story that wouldn't have registered on my radar otherwise. While they are knowledgable about the subject, it's their practical knowledge of living through the disease that they focus on. There are some technical asides, but it never feels like they're lecturing; just sharing their story and using science to clarify the odd point. Even when they do get technical the science is very accessible.
There's very little to nitpick about this first episode. It lays out the direction of the series and introduces the listener to the charming hosts. Their story flowed smoothly, sometimes humorously, and the half hour passed before I knew it.
I don't generally have time to listen to podcasts, but I'm going to make the time to listen to future episodes. I highly recommend it.
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