Two Disabled Dudes Podcast
By Kyle Bryant and Sean Baumstark
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Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM). Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch. Their podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast.
||Clean037 – Rare Disease Week On Capitol Hill & The Ataxian||We are excited to bring you the recording of a live panel following the showing of the film The Ataxian, which is the movie both of us are featured in! - You probably know about the movie by now- it focuses on our team's journey in Race Across...||3/12/2018||Free||View in iTunes|
||Clean036 – Patient Advocacy – Live at Reata Pharmaceuticals||We are proud to present the second half of our interviews at Reata Pharmaceuticals, this time it is all about Patient Advocacy and Patient Voice. Today is also the first day of Rare Disease Week, a US initiative sponsored by Rare Advocates,||2/26/2018||Free||View in iTunes|
||Clean035 – Drug Development – LIVE at Reata Pharmaceuticals||We’re excited to bring you the first of two episodes about the drug development process we recorded LIVE at Reata Pharmaceuticals headquarters in Irving, TX. In this episode, we talk to Warren Huff, the founder and CEO, and Dr. Collin Meyer,||2/12/2018||Free||View in iTunes|
||Clean034 – Living for Today with Katie Stevens, President of Dyskeratosis Congenta Outreach (DCO)||When tomorrow is filled with uncertainty, we learn to make the most out of each day. - Katie Stevens begins with the personal story of her son’s diagnosis with Dyskeratosis Congenita (DC), a rare genetic disorder.||1/29/2018||Free||View in iTunes|
||Clean033 – 3 Steps to use Gratitude to Bust Your Funky Attitude||Without gratitude, it’s easy for us to focus on our struggles in life. Living with a disability seems like a great excuse for us to get bogged down by negativity, to brood over how simple tasks can be a lot more difficult or even impossible for us to||1/15/2018||Free||View in iTunes|
||Clean032 – Behind The Scenes with Jake & Matt||This episode features the other half of the 2DD Production Team. We interview Jake Tompkins & Matt LaFleur and talk about what they do and why they do it. This show wouldn't be possible without their help. We record from opposite sides of the country,||1/1/2018||Free||View in iTunes|
||Clean031 – Anniversary Episode! Listener Appreciation||We began this project a year ago, hoping to give a voice to those who choose their own attitudes in the face of challenges that life serves up. So here we are, 30+ episodes later, and the 2 Dudes have come to realize how the podcast is kept alive and s.||12/18/2017||Free||View in iTunes|
||Clean030 – Our First Episode||Many of our listeners know that we are approaching our one year anniversary! - - In two weeks we are going to feature an episode that includes a few of our loyal listeners plus Jake and Matt, the two behind-th-scenes Dudes that make this show possi..||12/4/2017||Free||View in iTunes|
||Clean029 – Wonderful and Different with Paul Avery||“It’s a wonderful life; it’s just a different life.” - - We interview Paul Avery, CEO of World of Beer; former COO of the parent company of Outback Steakhouse, father of two daughters diagnosed with Friedreich's ataxia (FA); and chair of the||11/20/2017||Free||View in iTunes|
||Clean028 – Self-Discipline Update||We're bringing you a follow-up episode detailing our progress to the challenges we gave each other in a previous episode (026). We are working towards greater self-discipline! Inspired by our conversation with Drew Dudley (025) and the book Living With||11/13/2017||Free||View in iTunes|
||Clean027 – Live Patient Panel||Living with any condition presents challenges for everyone, some common and some unique. No matter our circumstances though, life is what we choose to make it. We are all dealt some cards and everyone chooses how to play the hand they're dealt.||11/6/2017||Free||View in iTunes|
||Clean026 – Self Discipline||In this episode, we get back to the basics. No guest, just 2 Dudes hanging out and talking about a topic very important to us: self-discipline. - Living with a disability is often frustrating. Maybe that’s an understatement.||10/23/2017||Free||View in iTunes|
||Clean025 – Leadership with Drew Dudley||Almost anyone with a disability can tell you that we are often thrust into the spotlight, even though we never asked for that. People with disabilities are too often seen as “brave” or “strong” or “inspiring,” when in reality we are just liv||10/9/2017||Free||View in iTunes|
||Clean024 – Rare Disease Parent Perspective with Tom Hamilton||Tom Hamilton spent 25 years on Wall Street and when his daughter was diagnosed with Friedreich's ataxia (FA), he started using all his knowledge and expertise to fight Rare Disease. Tom is on the Board of Directors for the Friedreich's Ataxia Research||9/25/2017||Free||View in iTunes|
||Clean023 – How The Challenged Athletes Foundation is Changing Lives||Patrick Lawrence is the Senior Programs Manager for the Challenged Athletes Foundation (CAF) and he joins us to talk about CAF and specifically their grant program in order to empower the athlete in all of us! -||9/10/2017||Free||View in iTunes|
||Clean022 – The Psychology of Disability with Dr. Dan Gottlieb||Dan Gottlieb is a practicing psychologist and therapist with more than 40 years of experience. Best known as the host of "Voices in the Family," a weekly radio program heard for more than 30 years on WHYY-FM, Philadelphia’s NPR affiliate.||8/31/2017||Free||View in iTunes|
||Clean021 – rideATAXIA Europe, Le Peloton de l’Espoir||rideATAXIA Europe - Le Peloton de l'Espoir was a 450 mile ride from Strasbourg, France to Lyon, France during July 1-8, 2017. There were 20 riders from the US and 30 riders from France. The purpose of the ride was to bring together the French and US F||8/7/2017||Free||View in iTunes|
||Clean020 – LIVE at Horizon Pharma||Join us for a discussion about patient engagement in rare diseases with Horizon Pharma. This is our first recording in front of a live audience!||7/24/2017||Free||View in iTunes|
||Clean019 – Dr. David Fajgenenbaum – Conquering Castleman Disease||In college, his friends called him The Beast. But then he got mysteriously sick and was on the brink of death 5 different times, stumping specialists. Diagnosed with Castleman Disease, Dr David Fajgenbaum earned his MD and started research on himself.||7/17/2017||Free||View in iTunes|
||Clean018 – Breaking Your Chains with Rudy Garcia-Tolson||- Sometimes being brave is what gets us through. Facing the unknown and facing unknown possibilities down the line is familiar to any of us living with a disability. - - Maybe no one understands that better than Rudy Garcia-Tolson,||7/3/2017||Free||View in iTunes|
||Clean017 – Disability Does Not Mean Inability with Roger Crawford||Sports Illustrated recognized Roger Crawford as "one of the most accomplished physically challenged athletes in the world." As a Hall of Fame speaker and best-selling author Roger teaches us how attitude affects outcomes. - Viktor E. Frankl,||6/19/2017||Free||View in iTunes|
||CleanKyle on The Lo-Down KHTK Sports 1140||Leading up to rideATAXIA's 8th annual NorCal ride, Kyle was interviewed on a popular local Sacramento show! Hosted by Damien Barling & Jason Ross, Kyle had the opportunity to talk about the ride, The Ataxian,||6/9/2017||Free||View in iTunes|
||Clean016 – Nutrition and Choices with Dr. Liz Applegate||In this episode we sit down with Dr. Liz Applegate, a nationally-renowned expert on all things related to nutrition. She speaks about her teaching career and a current program that strengthens people’s sharp-mindedness,||6/5/2017||Free||View in iTunes|
||Clean015 – Race Across America – Perspective from John and Mike||You've heard us talk about our 4-man Team, and 13-member Crew in Race Across America (RAAM). In this episode, we chat with the other two cyclists from Team FARA in RAAM; John Lockwood and Mike Mellott. -||5/22/2017||Free||View in iTunes|
||Clean014 – RAAM Crew Chief Mike Bryant (Kyle’s Dad)||Kyle's Dad, Mike Bryant joins us to talk about Team FARA in Race Across America and what it took to get the team safely across the country in "The World's Toughest Bike Race." - And Kyle tells a short story about being held hostage by a cat. -||5/8/2017||Free||View in iTunes|
||Clean013 – Our #1 Advice: Build Community||In this episode, Kyle & Sean talk about how building community has helped them and how it could help YOU. - “No man is an island…,” as John Donne reminds us. - - Growing up with a rare disease is, almost by definition, lonely.||4/24/2017||Free||View in iTunes|
||Clean012 – Matt Fritsch – The Spinal Cord Injury (SCI) Community||- “To hear from and learn from people who are in the same position...there’s nothing that compares to it.” - - A lot of our focus lately has been of Friedreich’s ataxia or FA - the disease that both of us share.||4/10/2017||Free||View in iTunes|
||Clean011 – Ron Bartek Part 2 – Collaboration||As promised, here is the second half of our interview with Ron Bartek, president and cofounder of the Friedreich’s Ataxia Research Alliance, or FARA. Please note that the audio quality is less than ideal, but still definitely enjoyable. -||3/27/2017||Free||View in iTunes|
||Clean010 -Adaptive Equipment Grants – Ataxian Athlete Initiative||The idea for the Ataxian Athlete Initiative (AAI) adaptive cycling equipment grant program came when Kyle received a grant from the Challenged Athletes Foundation, which he used to purchase a Catrike recumbent trike.||3/13/2017||Free||View in iTunes|
||Clean009 – Ron Bartek, Co-Founder and President, Friedreich’s Ataxia Research Alliance (FARA)||We are honored to interview Ron Bartek, president and co-founder of the Friedreich’s Ataxia Research Alliance (FARA). Since both of us have Friedreich's ataxia (FA), this organization and Ron himself are special to us. -||2/27/2017||Free||View in iTunes|
||Clean008 – Paul Melmeyer, Associate Director of Public Policy, NORD||"Alone we are rare. Together we are strong." -National Organization for Rare Disorders In this episode we are joined by Paul Melmeyer, Associate Director of Policy at the National Organization for Rare Disorders (NORD). Among other things,||2/22/2017||Free||View in iTunes|
||Clean007 – Interview with Max Bronstein of the EveryLife Foundation||- "We have a big innovation gap in this country when it comes to rare disease therapies. 7,000 diseases and only roughly 300 treatments on the market for those diseases. We have a long way to go and there's a lot of work that needs to be done if we .||2/20/2017||Free||View in iTunes|
||Clean006 – Nicole Boice, CEO Global Genes||- The knowledge and diagnosis of a rare disease can be a frightening time in anyone’s life. However, through education and through connecting to others, support - and hope - is abundant. - - “When I started looking at the stats and facts about||2/15/2017||Free||View in iTunes|
||Clean005 – Rare Disease Day Special Guests||In the rare disease community, strength is in unity and supporting one another. - February 28th is globally recognized as Rare Disease Day. Since Friedreich’s ataxia (FA), the disease shared by us Dudes, is considered a rare disease,||2/13/2017||Free||View in iTunes|
||Clean004 – Travel Gone Wild – How to conquer anxiety during travel with a disability.||How to conquer anxiety during travel with a disability.||1/30/2017||Free||View in iTunes|
||Clean003 – Travel and Mobility||Travel is freedom.||1/16/2017||Free||View in iTunes|
||Clean002 – Self Image||What is self image and why is it important? Join us as we discuss self image and things we can think about to help promote a healthy one. - A couple of videos that Sean referred to in this episode: - https://youtu.be/7XFLTDQ4JMk - https://youtu.||1/2/2017||Free||View in iTunes|
||Clean001 – Life Is About How We React||First of all, thank you for all the kind and encouraging feedback over the past week. Keep it coming! The best way to help the podcast is to visit us on iTunes, and/or Google Play, and/or Stitcher, subscribe,||12/19/2016||Free||View in iTunes|
||Clean000 – Welcome to the Two Disabled Dudes Podcast!||Welcome to the show! In this episode Kyle and Sean talk about creating the podcast and their connection through the diagnosis of Friedreich's ataxia (FA). The focus is on the empowerment they get by connecting to the FA community,||12/11/2016||Free||View in iTunes|
Awesome perspective on disability.
Gives some much-needed brevity to the lives of people with disabilities. Doesn't try to be showboating or sugary inspirational. Just genuine. 2 dudes talking over Skype about their lives, which tends to be affected by a rare disorder they share, Friedreich's ataxia. Poignant. Can't wait for more episodes.
Your new favorite podcast. For real.
If you don't already know Kyle, level yourself up and do some research. One of the most amazing humans I've been fortunate to encounter. This is just the latest layer of his epic legacy in the world. <3
Add this to your playlist!
Meet Kyle and Sean, two dudes who suffer from Friedreich's Ataxia (FA). Unfamiliar with FA? Doesn't matter. Give 'em a listen. You won't find two more genuine and likeable guys out there. Amongst their friendly banter and casual conversation, you'll find insight, inspiration, and encouragement... all this and more from a couple of guys who don't let their disability define what they can and cannot do.